Annabelle’s Challenge aims to promote awareness and medical research into the rare, life-threatening and incurable genetic condition vascular Ehlers-Danlos Syndrome (vascular EDS).
We work closely with the EDS National Diagnostic Service, a highly specialised service commissioned by NHS England with clinics based in Sheffield and London.
Thought to affect around 740 people in the UK, vascular EDS is a connective tissue disorder and means patients are at daily risk of their internal organs and arteries spontaneously rupturing.
To help raise the profile of vascular EDS, Annabelle's Challenge hosts the global awareness campaign REDS4VEDS Day which takes place every year on the third Friday of May.
The charity is also proud recipients of The Queen's Award for Voluntary Service, the MBE for volunteer groups.
Company Details
- Employees
- 8
- Founded
- -
- Address
- Walshaw Road, Walshaw Park House,united Kingdom
- Industry
- Non-Profit Organizations
- Website
- annabelleschallenge.org
- Keywords
- Charity, Fundraising, Research, Awareness, Genetics, Volunteering, Support, Education, Health.
- HQ
- Bury, England
- Competitors
- Amigos Worldwide, African Bird Club, Henwood Court Financial Planning Limited, Alex The Leukodystrophy Charity (Alex TLC), Al Naseeb Welfare Trust, The Ehlers-Danlos Support UK, The Aortic Dissection Charitable Trust, Little Aston Golf Club, Alternatives to Violence Project Britain, ADAPT Charity.
Annabelle's Challenge Vascular Eds Charity Questions
Annabelle'S Challenge Vascular Eds Charity's website is annabelleschallenge.org
Annabelle'S Challenge Vascular Eds Charity's LinkedIn profile is https://uk.linkedin.com/company/annabelle's-challenge
Annabelle'S Challenge Vascular Eds Charity has
8 employees.
View email and phone details for 8
employees at Annabelle'S Challenge Vascular Eds Charity.
Annabelle'S Challenge Vascular Eds Charity's industry is
Non-profit Organizations
Annabelle'S Challenge Vascular Eds Charity's top competitors are
Amigos Worldwide,
African Bird Club,
Henwood Court Financial Planning Limited,
Alex The Leukodystrophy Charity (Alex Tlc),
Al Naseeb Welfare Trust,
The Ehlers-Danlos Support Uk,
The Aortic Dissection Charitable Trust,
Little Aston Golf Club,
Alternatives To Violence Project Britain,
Adapt Charity.
Annabelle'S Challenge Vascular Eds Charity's categories are Non-profit Organizations
Annabelle'S Challenge Vascular Eds Charity's founding year is 2013
