Bionews, Inc.

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Bionews is a digital health solutions company dedicated to empowering more than 50 rare disease communities with trusted information, news, and connections. We foster a space where hope thrives and patients' voices are heard. Since 2013, we've been committed to serving patients and elevating their voices. Our motto is "For Rare, By Rare." With more than 50% of our team living with or caring for someone with a rare condition, we understand the unique challenges and needs of these communities. We've built a network of more than 500,000 registered members actively seeking news, clinical information, and sharing experiences. This creates a safe space for peer support, connection, and learning. Bionews offers a comprehensive platform serving a wide range of rare diseases, from larger condition specific communities including pulmonary fibrosis to smaller communities such as AADC. Visit Bionews.com to explore our communities and discover how we're making a difference for those living with rare diseases.
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News

Life with aHUS: Patients report chronic health issues - aHUS News

Life with aHUS: Patients report chronic health issues aHUS News

My latest battle is with unrelenting dental pain - aHUS News

My latest battle is with unrelenting dental pain aHUS News

Guest Voice: The ALS progression story we don’t often see - ALS News Today

Guest Voice: The ALS progression story we don’t often see ALS News Today

Guest Voice: I’m living and loving after my CF diagnosis - Cystic Fibrosis News Today

Guest Voice: I’m living and loving after my CF diagnosis Cystic Fibrosis News Today

Guest Voice: Moving, literally, in the right direction for sickle cell care - Sickle Cell Disease News

Guest Voice: Moving, literally, in the right direction for sickle cell care Sickle Cell Disease News

Guest Voice: Often, ALS requires unimaginably difficult decisions - ALS News Today

Guest Voice: Often, ALS requires unimaginably difficult decisions ALS News Today

The things I miss from my life before aHUS - aHUS News

The things I miss from my life before aHUS aHUS News

Soliris successfully manages pregnancy-related aHUS in woman - aHUS News

Soliris successfully manages pregnancy-related aHUS in woman aHUS News

Despite the side effects, Soliris has given me another chance at life - aHUS News

Despite the side effects, Soliris has given me another chance at life aHUS News

I remember aHUS, 6 weeks in the ICU, and 17 new medications - aHUS News

I remember aHUS, 6 weeks in the ICU, and 17 new medications aHUS News

For Awareness Day 2025, advocates to focus on ways to manage aHUS - aHUS News

For Awareness Day 2025, advocates to focus on ways to manage aHUS aHUS News

Hospitals help us heal, but they often don’t help us sleep - aHUS News

Hospitals help us heal, but they often don’t help us sleep aHUS News

My favorite tips to make life with aHUS a little easier - aHUS News

My favorite tips to make life with aHUS a little easier aHUS News

My lengthy ICU admission felt like being trapped in a horror movie - aHUS News

My lengthy ICU admission felt like being trapped in a horror movie aHUS News

Disappointment and gratitude can go hand in hand with aHUS - aHUS News

Disappointment and gratitude can go hand in hand with aHUS aHUS News

A simple sandwich offered new hope when I needed it most - aHUS News

A simple sandwich offered new hope when I needed it most aHUS News

Sometimes I forget just how rare living with aHUS is - aHUS News

Sometimes I forget just how rare living with aHUS is aHUS News

NORD offering variety of patient assistance programs to cover costs in aHUS - aHUS News

NORD offering variety of patient assistance programs to cover costs in aHUS aHUS News

Losing my hair during chemotherapy resulted in unexpected issues - aHUS News

Losing my hair during chemotherapy resulted in unexpected issues aHUS News

As rare disease statistics go, my case of aHUS is unusually rare |... - aHUS News

As rare disease statistics go, my case of aHUS is unusually rare |... aHUS News

Report aims to help distinguish aHUS disease vs. HELLP syndrome - aHUS News

Report aims to help distinguish aHUS disease vs. HELLP syndrome aHUS News

Newly Diagnosed: You Are Not Alone on Your Journey - aHUS News

Newly Diagnosed: You Are Not Alone on Your Journey aHUS News

Caregivers, aHUS patients prefer Ultomiris over Soliris: Survey |... - aHUS News

Caregivers, aHUS patients prefer Ultomiris over Soliris: Survey |... aHUS News

The Pandemic Won’t Stop Rare Disease Day on Feb. 28 - geneticobesitynews.com

The Pandemic Won’t Stop Rare Disease Day on Feb. 28 geneticobesitynews.com

Bionews to Cover 3 Rare Disease Day Events, Including NIH Conference - aHUS News

Bionews to Cover 3 Rare Disease Day Events, Including NIH Conference aHUS News

Soliris boosts kidney disease-free survival in aHUS patients: Real-world study - aHUS News

Soliris boosts kidney disease-free survival in aHUS patients: Real-world study aHUS News

Diagnosing, treating postpartum aHUS early key to better outcomes - aHUS News

Diagnosing, treating postpartum aHUS early key to better outcomes aHUS News

Walking On Water – Shalana Jordan - aHUS News

Walking On Water – Shalana Jordan aHUS News

The day I tasted 2 types of IV fluids running into my body - aHUS News

The day I tasted 2 types of IV fluids running into my body aHUS News

Newly Diagnosed: Taking the First Step on Your Journey - aHUS News

Newly Diagnosed: Taking the First Step on Your Journey aHUS News

Newly Diagnosed: Treatment Strategies for aHUS - aHUS News

Newly Diagnosed: Treatment Strategies for aHUS aHUS News

Crohn’s Disease May Lessen Effectiveness of Soliris in aHUS Patients - aHUS News

Crohn’s Disease May Lessen Effectiveness of Soliris in aHUS Patients aHUS News

AffloVest Can Help Clear Lung Mucus in COPD Patients - COPD News Today

AffloVest Can Help Clear Lung Mucus in COPD Patients COPD News Today

A Day in the Life of a COPD Patient - COPD News Today

A Day in the Life of a COPD Patient COPD News Today

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