Cdkl5 In Color

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Amanda Jaksha and Marissa Bishop are experienced CDKL5 patient engagement advocates channeling over 25 years of caregiving and advocacy into powerful storytelling! Visit www.CDKL5inColor.com to see their advocacy activities and appearances for CDKL5. Want to build connection with the CDKL5 community? Reach out! On the CDKL5 in Color podcast you'll hear Marissa and Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights. The goal? To weave a vibrant tapestry of community stories for you to explore. Listen to the podcast for free on Spotify, Apple Podcasts, & YouTube!
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