The CLL Advocates Network (CLLAN) was founded in 2014 by representatives from Canada, Czech Republic, France, Ireland, Italy, Portugal, UK and the United States. It is hosted under the umbrella of the Leukaemia Patient Advocates Foundation (LePAF), a patient-led non-profit foundation based in Switzerland acting as a legal platform for self-sustained patient advocacy initiatives. The CLL Advocates Network is governed by a Steering Committee consisting of the 9 members, of whom 6 are patients and 1 is a carer.
WHY IS CLLAN IMPORTANT?
- CLL is the most common leukaemia in the Western world, with approximately 4 to 5 people in every 100,000 affected, but is poorly understood.
- Many countries do not have a community or patient groups dedicated to supporting CLL patients.
- A global network is indispensable to share knowledge, experience and best practices across countries, advocate for equitable standards of care and treatment standards and help improve patients´ understanding of clinical trials and the drug development process.
CLLAN MISSION
Improve CLL patient outcomes as a global network of CLL patient advocates.
Company Details
- Employees
- 5
- Address
- The Challenges Faced By Patients With Cll Who Undergo Active Monitoring
- Industry
- Health And Human Services
- NAICS
-
Administration of Human Resource ProgramsAdministration of Veterans' Affairs
- Website
- https://www.clladvocates.net/
- Competitors
- Leadby.co, MPN Advocates Network, Campaigning for Cancer, European Patient Advocacy Institute, CML Advocates Network, International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Acute Leukemia Advocates Network, International Sickle Cell Centre (ISCC), The Aplastic Anaemia Trust, CLL Support.
Cll Advocates Network Questions
Cll Advocates Network's website is https://www.clladvocates.net/
Cll Advocates Network's LinkedIn profile is https://www.linkedin.com/company/clladvocates
Cll Advocates Network has
5 employees.
View email and phone details for 5
employees at Cll Advocates Network.
Cll Advocates Network's industry is
Health and Human Services
Cll Advocates Network's top competitors are
Leadby.co,
Mpn Advocates Network,
Campaigning For Cancer,
European Patient Advocacy Institute,
Cml Advocates Network,
International Workshop On Chronic Lymphocytic Leukemia (Iwcll),
Acute Leukemia Advocates Network,
International Sickle Cell Centre (Iscc),
The Aplastic Anaemia Trust,
Cll Support.
Cll Advocates Network's categories are Health and Human Services
