There are so many patients in advocacy groups worldwide who are full of energy, commitment and will to improve other people’s lives. Of these, the most unique group are those who fight for the rights of patients with rare diseases. Sometimes their voice struggles to break through among other, louder voices. People with rare diseases are often overlooked by the healthcare system, they are underdiagnosed and public awareness of these diseases is far from sufficient.
That is why we have made it our mission to support in every possible way those who are fighting for a better life for patients with rare diseases. How do we do this?
• We do it through scientific knowledge. We create research and reports to better understand patient situations and find appropriate approaches and procedures.
• We do it through patient advocacy. We support the pursuit of the best therapies and medical care, focusing on both the health and quality of life of patients.
• We do it through education. We give patient organizations’ leaders practical knowledge on patient advocacy – effective tools, procedures and best known solutions.
• We do it through training. We show physicians and nurses how to build strong relationships with patients and respond to their needs.
• We do it through collaboration. We discuss, exchange views and share experiences – with physicians, patient advocates, pharma representatives, stakeholders and anyone else who cares about patients with rare diseases.
Because we believe that rare means exceptional, not unimportant.
Company Details
- Employees
- 4
- Founded
- -
- Address
- Żelazna 2, 5th Floor,poland
- Industry
- Non-Profit Organizations
- Website
- eduinstitute.org
- Keywords
- Confetti Marketing Co..
- HQ
- Katowice, Silesia
- Competitors
- Confetti Marketing Co., Estrogen Matters, Healthcare Poland Foundation, Meta Cell Technology, TECHNUX SMC PVT LIMITED, FOPI - Die forschenden Pharmaunternehmen, The Collaborative Community on Ophthalmic Innovation (CCOI), Eurofins w Polsce, Confetti Collective, GZM. Górnośląsko-Zagłębiowska Metropolia.
Healthcare Education Institute Foundation Questions
Healthcare Education Institute Foundation's website is eduinstitute.org
Healthcare Education Institute Foundation's LinkedIn profile is https://pl.linkedin.com/company/eduinstitite
Healthcare Education Institute Foundation has
4 employees.
View email and phone details for 4
employees at Healthcare Education Institute Foundation.
Healthcare Education Institute Foundation's industry is
Non-profit Organizations
Healthcare Education Institute Foundation's top competitors are
Confetti Marketing Co.,
Estrogen Matters,
Healthcare Poland Foundation,
Meta Cell Technology,
Technux Smc Pvt Limited,
Fopi - Die Forschenden Pharmaunternehmen,
The Collaborative Community On Ophthalmic Innovation (Ccoi),
Eurofins W Polsce,
Confetti Collective,
Gzm. Górnośląsko-Zagłębiowska Metropolia.
Healthcare Education Institute Foundation's categories are Non-profit Organizations
Healthcare Education Institute Foundation's founding year is 2017
