Indo US Organization for rare diseases (IndoUSrare) is an independent non-profit organization focused on helping patients with rare diseases of Indian origin in the USA, India, & globally with a vision to build collaborative highway-bridges between the west & the east to accelerate research & development of diagnostics & therapies through education, advocacy, research, & grants.
IndoUSrare serves as a gateway to the highway-bridges between the USA, & the Indian subcontinent to accelerate research & development of Diagnostics, Drugs, Devices, Biologics, & Therapeutics for rare diseases.
The USA is the largest funder of biomedical research with a forward-looking regulatory framework for innovative new medicines including cell & gene therapies. India is the largest democracy with a genetically diverse population of over 1.3 Billion people. Yet, India accounts for less than 1% of the global clinical research footprint. IndoUSrare will address this gap through enabling education, awareness, advocacy, fostering research collaborations & patient engagement in global clinical trials.
Our Board of Directors:
Anish Bhatnagar, M.D., Soleno Therapeutics Inc
Frank Sasinowski, MS, MPH, JD, Regulatory Attorney, Hyman Phelps & McNamara, P.C. & Vice-chair of EveryLife Foundation for rare diseases.
Harsha K Rajasimha, Ph.D. Founder and Chairman
Ms. Juhi Naithani, MBA, Principal, bGlobal Consulting
Narayanan Govindarajan, MS, UWorld
Reena Kartha, M.S., Ph.D., Center for Orphan Drug Research, University of Minnesota
Advisors:
Stephen Groft, Pharm.D., Board Director of ICORD, Retired Director, NIH, Bethesda, MD
Akkaraju Sarma, MD, Ph.D., FAAFP, Ellis Island Medal of Honor 2016 Recipient, Pennsylvania Resident
Preveen Ramamoorthy, Ph.D., Executive Director, IAVI
Rajesh Gooty, President, Lead America Inc.
Ravi Mistry, M.S, MBA, Leader, Entrepreneur, Angel investor, Educator
Team Members:
Srinivas Seshadri, Director, Roarforrare, SFBayarea
Company Details
- Employees
- 15
- Founded
- -
- Address
- Herndon, Va, Us
- Industry
- Hospitals And Health Care
- NAICS
-
Health Care and Social AssistanceSocial Assistance
- Website
- indousrare.org
- Keywords
- biotechnology, gene therapy, cell therapy, clinical trials, rare diseases, orphan drugs, clinical research, patient advocacy, Indian subcontinent, India, USA, East and West, Collaborative, Bridges, Highway-Bridges, Collaborations, pharmaceuticals, Market access, Sponsors, CROs, Sites, Policy, Regulatory, rare disease, Global collaboration, cross-border.
- HQ
- Herndon, VA
- Competitors
- NiemannPick India, Organization for Rare Diseases India, Aarogya Seva: Global Health Volunteer Alliance, UPMC, Jeeva Clinical Trials Inc., RARE DISEASES INTERNATIONAL, Grovention, Myositis India, Lysosomal Storage Disorders Support Society (LSDSS) - India, National Organization for Rare Disorders.
Indo Us Organization For Rare Diseases (Indousrare) Questions
Indo Us Organization For Rare Diseases (Indousrare)'s website is indousrare.org
Indo Us Organization For Rare Diseases (Indousrare)'s LinkedIn profile is https://www.linkedin.com/company/indo-us-rare
Indo Us Organization For Rare Diseases (Indousrare) has
15 employees.
View email and phone details for 15
employees at Indo Us Organization For Rare Diseases (Indousrare).
Indo Us Organization For Rare Diseases (Indousrare)'s industry is
Hospitals and Health Care
Indo Us Organization For Rare Diseases (Indousrare)'s top competitors are
Niemannpick India,
Organization For Rare Diseases India,
Aarogya Seva: Global Health Volunteer Alliance,
Upmc,
Jeeva Clinical Trials Inc.,
Rare Diseases International,
Grovention,
Myositis India,
Lysosomal Storage Disorders Support Society (Lsdss) - India,
National Organization For Rare Disorders.
Indo Us Organization For Rare Diseases (Indousrare)'s categories are Hospitals and Health Care
Indo Us Organization For Rare Diseases (Indousrare)'s founding year is 2019
