The Molly Watt Trust was set up to raise awareness of all things related to Usher Syndrome, a rare genetic condition discovered by Scottish Ophthalmologist Charles Usher back in 1914 it causes both Deafness and Retinitus Pigmentosa (a form of blindness).
Usher Syndrome is a progressive condition and to date there is no cure. Usher Syndrome affects both hearing and sight, for some it affects balance. This condition leads to challenges and differences in communication, mobility, often causing anxiety often resulting in isolation and depression.
Many use hearing aids or cochlear implants to access sound and are able to communicate with speech, however, as sight deteriorates it appears that so too does hearing because the ability to use visual clues like lip reading, facial feature and body language decrease.
Some communicate with sign language or tactile signing as sight deteriorates. Many maintain a small amount of central vision which remains good but makes life incredibly challenging.
Assistive technologies provide digital access to the world. Computers and tablets with the relevant software enable accessibility, many have built in accessibility features, magnifiers, screen readers, speech to text software, large text, tactile aids, Bradley timepiece and Applewatch. Ereaders.
The main focus and aims of Molly Watt Trust:
To raise awareness of Usher Syndrome
Organising meet ups / social events
Provide small group workshops
Offer mentoring service
Provide Keynote awareness presentations
Usher Syndrome Enablement
To research and recognise assistive technologies
Provide small group workshops using assistive tech
To run fundraising projects and case studies
Molly Watt Trust recognises the many challenges of those living with Usher Syndrome and as a result very active on social media, sharing information and experiences whilst actively fundraising for small items of assistive tech/ equipment to enhance life living with Usher Syndrome.
Company Details
- Employees
- 4
- Address
- Maidenhead , Berkshire, Gb
- Industry
- Non-Profit Organizations
- Website
- http://www.molly-watt-trust.org
- HQ
- Maidenhead , Berkshire
Molly Watt Trust Questions
Molly Watt Trust's website is http://www.molly-watt-trust.org
Molly Watt Trust's LinkedIn profile is https://uk.linkedin.com/company/molly-watt-trust
Molly Watt Trust has
4 employees.
View email and phone details for 4
employees at Molly Watt Trust.
Molly Watt Trust's industry is
Non-profit Organizations
Molly Watt Trust's top competitors are
Manifesto,
Molly Watt Talks,
Watt Money,
Rbc Capital Markets,
Pixar Animation Studios.
Molly Watt Trust's categories are Non-profit Organizations
