Paediatric Oncology Reference Team (Port)

Paediatric Oncology Reference Team (Port) company information, Employees & Contact Information

Enhancing patient outcomes through research and education Paediatric Oncology Reference Team (PORT) is a team of parents in the UK who have direct experience of children's cancer. Some of our children are post treatment and are well, and some of us are bereaved. We all have experience of working with various cancer related charities and bring a wealth of professional experience to PORT. PORT is an independent body and has developed autonomously although we enjoy very close links with CRCTU, the Cancer Research UK Manchester Institute, GOSH, Royal Marsden, and other paediatric oncology primary treatment centres. Members of PORT sit on the NCRI Children's Cancer and Leukaemia Clinical Study Group, the NCRI Leukaemia subgroup and CCLG Publications Committee. PORT's aims - Assist medical professionals in the writing and reviewing of information for parents and children (of all ages) – particularly patient information sheets - Advise clinicians on the practicality and value of clinical trials and studies - Provide generic representation for families of children living with cancer - Provide advice to clinicians and others on the reality and practicalities of caring for a chronically ill child Email us (neil.ranasinghe@lseg.com) if you are interested in reviewing documentation for parents. No writing or medical experience required.
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