Our Mission
Work with Congress and the Administration to ensure that the orphan drug exclusion from eligibility for negotiation under the Medicare Drug Price Negotiation Program allows products to remain excluded so long as their FDA approved uses are exclusively for rare diseases.
Our Goal
Restore the spirit of the research and development incentives in the Orphan Drug Act that have succeeded for more than 40 years so more persons living with rare diseases can have treatment options.
Our Members
The Task Force is a growing, multi-sector public policy and advocacy collaboration of organizations representing persons living with rare diseases, biopharmaceutical innovators, and other health care stakeholders.
Company Details
- Founded
- -
- Address
- 601 New Jersey Ave Nw, Washington,district Of Columbia 20001,united States
- Industry
- Government Relations Services
- Keywords
- Washington.
- HQ
- Washington, District of Columbia
- Competitors
- Alexion Pharmaceuticals, Inc., National Rheumatoid Arthritis Society (NRAS), The Rare Disease Company Coalition, Alliance for Person-Centered Care, Precision AQ - Investor Relations & External Communications, NASDOH, The Dual Eligible Coalition, Sinew Solutions, RxGPS Alliance, Cancer Support Community.
Save Rare Treatments Task Force Questions
Save Rare Treatments Task Force's website is https://www.saveraretreatments.org
Save Rare Treatments Task Force's LinkedIn profile is https://www.linkedin.com/company/saveraretreatments
Save Rare Treatments Task Force's industry is
Government Relations Services
Save Rare Treatments Task Force's top competitors are
Alexion Pharmaceuticals, Inc.,
National Rheumatoid Arthritis Society (Nras),
The Rare Disease Company Coalition,
Alliance For Person-Centered Care,
Precision Aq - Investor Relations & External Communications,
Nasdoh,
The Dual Eligible Coalition,
Sinew Solutions,
Rxgps Alliance,
Cancer Support Community.
Save Rare Treatments Task Force's categories are Government Relations Services
Save Rare Treatments Task Force's founding year is 2023
