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David and Karen Kahn started ForeBatten Foundation in early 2017 when they received the devastating news that their twin girls, Amelia and Makenzie, had been diagnosed with juvenile Batten disease (CLN3); a rare and fatal genetic disorder of the nervous system which leads to vision loss, seizures, and loss of speech and motor function.
ForeBatten supports researchers as they develop multiple therapies to detect, treat and potentially cure Batten disease. Rare diseases like Batten do not receive the same government assistance as other, more prevalent diseases, so we must join together as parents and caring individuals who are not willing to accept the fate of a Batten diagnosis.
We work tirelessly to give children with Batten disease the best possible life, to spread awareness of the urgency to fund new treatments, and to help all families affected by Batten disease.
Company Details
- Employees
- 4
- Founded
- -
- Address
- Scottsdale, Az 85255, Us
- Industry
- Research Services
- Website
- https://www.forebatten.org/
- Keywords
- Scottsdale.
- HQ
- Scottsdale, AZ
Forebatten Foundation Questions
ForeBatten Foundation's website is https://www.forebatten.org/
ForeBatten Foundation's LinkedIn profile is https://www.linkedin.com/company/forebatten-foundation
ForeBatten Foundation has
4 employees.
View email and phone details for 4
employees at ForeBatten Foundation.
ForeBatten Foundation's industry is
Research Services
ForeBatten Foundation's top competitors are
Neurocrine Biosciences,
Agios Pharmaceuticals,
Vanguard Clinical Rare Disease Foundation,
Vanguard Clinical, Inc.,
Nitto Avecia,
Histogenics Corporation,
Zihipp Limited,
Neumora,
Relmada Therapeutics, Inc,
Bdsra Foundation.
ForeBatten Foundation's categories are Research Services
ForeBatten Foundation's founding year is 2009
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Top ForeBatten Foundation Employees
-
Tiffany Sepp
Ceo, Vanguard Clinical | Founder, Vc…
San Diego, California, United States, United States3gmail.com, abh.com, vanguardclinical.com -
Karen Kahn
Co-Founder At Forebatten Foundation
Chapel Hill, North Carolina, United States, United States
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