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Neurofibromatosis Patients United (NFPU) is the European Neurofibromatosis umbrella patient association. Neurofibromatosis patients all around Europe face very similar challenges: limited access to proper medical an psychological care, limited access to information, limited access to clinical trials, little awareness in the general public and also limited awareness among health care professionals. These challenges are easier to overcome together. For that we built a strong joined European association. European NF patient organisations need to exchange ideas and best practice models constantly. If we choose the best ideas, have and develope a common strategy and implement this strategy together all over Europe, we can save a lot of resources, while maximizing the impact of our activities.
Company Details
- Employees
- 3
- Founded
- -
- Address
- Online Via Zoom
- Industry
- Non-Profit Organizations
- Website
- https://www.nf-patients.eu/
- Keywords
- Wheaton.
- Competitors
- Zorgschakel Enschede, Neurofibromatosis Network, NF2 BioSolutions UK & Europe, FECAVA, SpringWorks Therapeutics, NF Kinder – Patient:innenorganisation zur Förderung der Neurofibromatoseforschung Österreich, Irish Association for Cancer Research (IACR), nf2 presse, PRG S&Tech Inc., NF2 BioSolutions.
Nf Patients United Questions
NF Patients United's website is https://www.nf-patients.eu/
NF Patients United's LinkedIn profile is https://www.linkedin.com/company/nfpu
NF Patients United has
3 employees.
View email and phone details for 3
employees at NF Patients United.
NF Patients United's industry is
Non-profit Organizations
NF Patients United's top competitors are
Zorgschakel Enschede,
Neurofibromatosis Network,
Nf2 Biosolutions Uk & Europe,
Fecava,
Springworks Therapeutics,
Nf Kinder – Patient:innenorganisation Zur Förderung Der Neurofibromatoseforschung Österreich,
Irish Association For Cancer Research (Iacr),
Nf2 Presse,
Prg S&tech Inc.,
Nf2 Biosolutions.
NF Patients United's categories are Non-profit Organizations
NF Patients United's founding year is 2017
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