Avril Kennan

Avril Kennan Email and Phone Number

CEO, Health Research Charities Ireland (HRCI). PhD in genetics. Ambitious for a better world through collaboration & inclusion. @ National and International Skin Registry Solutions CLG
Avril Kennan's Location
Ireland, Ireland
Avril Kennan's Contact Details

Avril Kennan work email

Avril Kennan personal email

n/a
About Avril Kennan

As the CEO of Health Research Charities Ireland (HRCI), I bring a wealth of experience and dedication to nurturing a dynamic community of over 45 charities committed to advancing health research while advocating for their needs at a national level.Drawing from my academic background with a PhD in genetics and through writing, public speaking and collaborations, I contribute to national and international dialogues on a range of health research topics. These include patient and public involvement (PPI), research impact, health data, research funding, evidence-based policy, genetics & genomics, rare diseases etc.Driven by my belief in the power of research to transform lives, I am committed to working with others to ensure that the voices of health research charities and diverse stakeholders are included in all health research endeavours.

Avril Kennan's Current Company Details
National and International Skin Registry Solutions CLG

National And International Skin Registry Solutions Clg

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CEO, Health Research Charities Ireland (HRCI). PhD in genetics. Ambitious for a better world through collaboration & inclusion.
Avril Kennan Work Experience Details
  • Health Research Charities Ireland
    Ceo
    Health Research Charities Ireland Aug 2017 - Present
    Dublin, County Dublin, Ireland
    Health Research Charities Ireland (HRCI) is the national umbrella organisation of charities active in health, medical and social care research, together representing over 1 million people in Ireland. Through support and advocacy, we represent their joint interests, to achieve our vision of improved lives through a united community of health research charities. We offer our members the potential for matched research funding through the Joint Funding Scheme, run in partnership with the Health Research Board. We also run the Irish Health Research Forum, bringing together all stakeholders to improve health research in Ireland. www.hrci.ie
  • Irish Health Research Forum
    Manager And Steering Group Member
    Irish Health Research Forum Jun 2014 - Present
    Ireland
    The Irish Health Research Forum, which is run by HRCI, brings together all stakeholders nationally to positively influence health research in Ireland. The Forum considers key health research issues at two events every year and produces widely used reports and recommendations. The events are constructive and inclusive, with benefit to patients and the public being at the heart of all activities. As an independent organisation, representing 40 charities and with a strong patient-focus, HRCI is ideally placed to bring people together to tackle the big issues in health research and to bring about change. We are supported in all Irish Health Research Forum activities by an exceptional and diverse Steering Group of leaders. For more information, see: www.hrci.ie/ihrf
  • National And International Skin Registry Solutions Clg
    Director
    National And International Skin Registry Solutions Clg Jan 2021 - Present
    Ireland
    National and International Skin Registry Solutions CLG (NISR) is a not-for-profit organisation established in 2015 to build and maintain skin registries both in Ireland and Internationally.The role of NISR is to collect and protect the data of consenting patients with specific dermatological conditions, while supporting the development of a collaborative, multi-stakeholder network to sustain their growth and utility. NISR are now launching a cohort of skin condition registries specifically focused on the Irish population. NISR's initial focus is on Epidermolysis bullosa, COVID-19, Alopecia Areata, and Eczema or Atopic Dermatitis, with others shortly to follow.
  • Common Purpose Ireland
    Advisory Group Member
    Common Purpose Ireland Jul 2018 - Apr 2023
    Ireland
    Common Purpose is a global social enterprise specializing in peer to peer experiential leadership development which uses the city as its classroom. Our programmes connect leaders from a variety of sectors, backgrounds, beliefs, and geographies for the cross-pollination of ideas, influences and inspirations.
  • Rare Diseases Ireland
    Board Member
    Rare Diseases Ireland 2014 - Jan 2018
    Ireland
    Rare Diseases Ireland is a non governmental organisation acting as a national alliance for voluntary groups representing the views and concerns of people affected by or at risk of developing genetic or other rare disorders.
  • Debra International
    Executive Committee Member
    Debra International 2016 - Nov 2017
    International
  • Debra Ireland
    Head Of Research And Advocacy
    Debra Ireland May 2014 - Aug 2017
    Dublin 2
    DEBRA Ireland is the charity that works on behalf of people living with the genetic, and often devastating, condition EB (epidermolysis bullosa). My role involved working with a multitude of stakeholders in the research, non-profit, medical, policy and political arenas. I led international and national projects in the areas of patient registries, patient involvement, clinical practice guidelines, medical research and research communications.
  • Debra Ireland
    Research Manager
    Debra Ireland 2007 - May 2014
    Dublin, Ireland
  • Medical Research Charities Group
    Board Member
    Medical Research Charities Group 2012 - Aug 2017
    Ireland
  • European Patient Advisory Group (Epag), Ern-Skin
    Debra International Representative
    European Patient Advisory Group (Epag), Ern-Skin 2016 - 2017
    International
    The ERN-Skin, is a network of 56 centres of expertise in the field of rare and undiagnosed skin diseases from 18 countries, to bring highly-specialised, high-quality and accessible healthcare closer to patients. The ePAGs brings together elected patient representatives who ensure that the patient voice is heard throughout the ERN development process.
  • Trinity Research Staff Association
    Co-Founder And Vice Chairperson
    Trinity Research Staff Association 2005 - 2007
    An organisation representing contract researchers in Trinity College Dublin
  • Trinity College Dublin
    Senior Research Fellow
    Trinity College Dublin 1999 - 2007
    Genetics research (including molecular biology, tissue culture, gene therapy), undergrad and postgrad student supervision and mentoring, publishing and presenting of scientific results grant writing and project development and management.

Avril Kennan Skills

Policy Advocacy Project Management Strategic Planning Communication Lobbying Molecular Biology Clinical Practice Guidelines Lifesciences Healthcare Research Management Grant Writing Scientific Writing Science Communication Clinical Trials Genetics Biotechnology Research Management Life Sciences

Avril Kennan Education Details

Frequently Asked Questions about Avril Kennan

What company does Avril Kennan work for?

Avril Kennan works for National And International Skin Registry Solutions Clg

What is Avril Kennan's role at the current company?

Avril Kennan's current role is CEO, Health Research Charities Ireland (HRCI). PhD in genetics. Ambitious for a better world through collaboration & inclusion..

What is Avril Kennan's email address?

Avril Kennan's email address is kennan.avril@tcd.ie

What schools did Avril Kennan attend?

Avril Kennan attended Trinity College Dublin, University Of Galway.

What are some of Avril Kennan's interests?

Avril Kennan has interest in Human Rights, Science And Technology, Children, Health.

What skills is Avril Kennan known for?

Avril Kennan has skills like Policy, Advocacy, Project Management, Strategic Planning, Communication, Lobbying, Molecular Biology, Clinical Practice Guidelines, Lifesciences, Healthcare, Research Management, Grant Writing.

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