Patient Advocate
CurrentCo-founder UNC Clot Connect, maintain clotconnect.org and education materials for UNC School of MedicineCommunication Director and Education Advisor for the National Blood Clot AllianceMember of the Clinical Practice Guideline Panel on Thrombophilia with the American Association of Hematology ASH (2015-2018), advising in the development of evidence based clinical practice guidelines on venous thromboembolism Member of the Centers for Disease Control and Prevention Division of Blood Disorders (CDC DBD) Expert Panel on Prevention Research Adviser on Patient and Family Engagement to the Centers for Medicare and Medicaid (CMS) Partnership for Patients initiative targeting hospital-acquired conditions Member of the National Quality Forum (NQF) Affinity Groups on venous thromboembolism and adverse drug events Speaking engagements: The Centers for Disease Control and Prevention (CDC), Centers for Medicare and Medicaid (CMS), numerous medical conferences