At Kielo Research, my focus as a Senior Research Associate encompasses championing patient involvement in the drug development pathway, particularly within the realm of rare diseases. Our team's dedication to integrating the patient voice into drug development processes is not only a professional commitment but a personal passion.Leveraging from my clinical experience working direcly with patients and my work in the field of patient preferences, my efforts contribute to the creation of patient-informed study designs and the selection of patient-centric outcomes. This mission aligns with my active role in the PREFER Experts Network, where we facilitate patient preferences as a cornerstone of clinical research.