Dr. Daniel Darvish has a board breath of knowledge, on orphan diseases, gene therapy, preclinical and clinical research. His experience over the past 20 years includes serving as a Co-founder, Board member, and a Clinical Consultant at Advancement of Research in Myopathies (ARM), a patient advocate group, and HIBM Research Group, a non-profit biotechnology organization, dedicated to research aimed at developing treatments for GNE myopathy. He was responsible for the conceptual design and execution of gene hunting and Phase I/II study for GNE myopathy. Dr. Darvish has (co)written over 20 scientific papers in the area of neuromuscular biology.