Clinical Research Coordinator
Current
Boston, Massachusetts, United States
- Center for Rare Neurological Diseases
- Work on single-gene disorders where a single gene defect is sufficient to cause disability
- Coordinate ongoing research studies including a gene therapy trial for infants with Canavan Disease and an investigator-initiated drug trial for females with adrenoleukodystrophy
- Collect data during study visits, manage patient correspondence, handle IRB submissions and responsible for study design