Director, Polyarteritis Nodosa Support Network
The Pan Support Network
Wexford, Pa
Founded and manage The Polyarteritis Nodosa Support Network, an international patient advocacy organization. Increased membership from 25 to 550 members in 7 years. The organization is now active in more than seven countries. Established powerful partnerships with National Institute of Health, University of Pennsylvania, and the national Vasculitis Foundation.Manage a volunteer team of eight people from the PAN Support Network for marketing, patient outreach, and establishing medical liasons to help patient needs.Increased patient enrollment in a clinical study by more than 60% in a three year period using targeted, marketing strategies.Connected more than 30 patients to critical medical resources through the creation of a web-based, Rapid Response Team database.Attend medical conferences as a patient advocacy representative. Produced a series of monthly podcasts to promote the Vasculitis Foundation