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Emil Kakkis personal email
I have spent my career so far seeking to develop new treatments for rare diseases that built upon my training in biochemistry, medicine and research. I have had the good fortune to succeed in developing and getting FDA approval for 3 medicines for rare disease patients, and getting another 3 into clinical studies. My goals going forward are to work on improving the regulatory process that controls how rare disease treatments get developed. I have gone back to biotech again in 2010, starting Ultragenyx Pharmaceutical Inc. We now will have 4 products in 5 clinical programs this year and team of about 70 people. We have gone public in an IPO in January 2014. The development team are working to treat some of the many untreated rare diseases and focused on translating these therapies as promptly as possible. It can never be fast enough. Specialties: Drug development in rare diseasesBiochemical genetic disease treatmentMucopolysaccharidoses and their clinical management
Bay Area Creative Foundation
View- Website:
- bayareacreativefoundation.org
- Employees:
- 5
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FounderBay Area Creative FoundationUnited States
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Board MemberActio Biosciences, Inc. Jul 2024 - PresentSan Diego, Ca, Us -
Board MemberActio Biosciences, Inc. Jul 2024 - Jul 2024San Diego, Ca, Us
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Founder, Chief Executive Officer And PresidentUltragenyx Pharmaceutical Inc. Apr 2010 - PresentNovato, California, UsUltragenyx is a biotechnology company focused on development of drugs for rare and ultrarare genetic disorders. Formed in April 2010, The company went public on January 31, 2014 on NASDAQ with the symbol RARE. The company has 4 approved products for the treatment of five indications MPS 7, XLH, TIO, LC-FAOD and familial hypercholesterolemia diseases. The company has advanced stage programs in gene therapy for multiple diseases and programs in OI and Angelman syndrome. The company is headquartered in Novato, California, USA and has commercial presence in the US, Canada, EU, Turkey, MENA, Latin America and Japan. Go to www.ultragenyx.com for more information. -
Board MemberEverylife Foundation For Rare Diseases May 2009 - May 2023Washington, District Of Columbia, Us -
PresidentEverylife Foundation For Rare Diseases Mar 2009 - Sep 2016Washington, District Of Columbia, UsThe EFRD was formed to improve the development process for very rare disorders. The use of biomarkers as primary endpoints and improved design of clinical studies for rare disorders are two initiatives that are part of the general goal of "accelerating treatment for rare disorders". The EFRD succeeded in getting legislation into FDASIA that could improve access to the accelerated approval pathway. Go to www.everylifefoundation.org for more information and sign up for updates.
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Board MemberNational Organization For Rare Disorders 2009 - Nov 2011
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Development ConsultantBiomarin Mar 2009 - Jun 2010San Rafael, Ca, UsAfter 10 years, I have moved on from BioMarin but am still a development consultant for them during the coming year. I have started a Foundation now to accelerate the development of treatments for rare diseases. Go to www.curetheprocess.org -
Chief Medical OfficerBiomarin Sep 1998 - Feb 2009San Rafael, Ca, Us
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Assistant ProfessorHarbor-Ucla Research And Education Institute 1993 - 1998
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Assistant ProfessorHarbor Ucla Med Center, Research And Education Institute 1993 - 1998
Emil Kakkis Skills
Emil Kakkis Education Details
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UclaBiological Chemistry -
Pomona CollegeBiology
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Wilson High School Of Long Beach Ca
Frequently Asked Questions about Emil Kakkis
What company does Emil Kakkis work for?
Emil Kakkis works for Bay Area Creative Foundation
What is Emil Kakkis's role at the current company?
Emil Kakkis's current role is Founder.
What is Emil Kakkis's email address?
Emil Kakkis's email address is ek****@****mrn.com
What schools did Emil Kakkis attend?
Emil Kakkis attended Ucla, Pomona College, Wilson High School Of Long Beach Ca.
What are some of Emil Kakkis's interests?
Emil Kakkis has interest in Exercise, Home Improvement, Reading, Shooting, Gourmet Cooking, Sports, Food, Home Decoration, Health, Diy.
What skills is Emil Kakkis known for?
Emil Kakkis has skills like Biotechnology, Drug Development, Clinical Trials, Genetics, Clinical Research, Biochemistry, Fda, Life Sciences, Pharmaceutical Industry, Clinical Development, Start Ups, Oncology.
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