Chief Patient Advocate
CurrentC-suite executive with a systemic strategy to global internal and external Patient Advocacy that defines corporate culture, informs all aspects of development and access to orphan drug products, and creates educational and supportive initiatives to improve the lives of individuals and families living with rare diseases. Industry leader in the advancement of Patient Advocacy as an essential function in corporate life sciences, of Public Policy as an advocacy-based approach to identifying and solving access challenges, and of helping affected individuals and families become their own best advocates.