Jodi Wolff, Phd Email & Phone Number

Tucson, Az, Us

Washington Dc, New York, Us

Patient advocacy consultant for non-profit organizations and biotechnology companies. Expertise in community engagement, strategic planning, DEI, pre competitive collaborations, regulatory engagement, patient focused drug development, and clinical trial protocol/recruitment/retention for rare diseases.

Us

Durham, North Carolina, Us

Durham, North Carolina, Us

Pratteln, Basel-Country, Ch

Pratteln, Basel-Country, Ch

• Establish and maintain relationships with patient advocacy community, neuromuscular specialists, and scientific community• Create advocacy strategy for U.S., including PAG regulatory strategy, and align with global activities• Assist in development and review of product-related and clinical trial information for patient community and clinicians across three rare diseases• Develop recruitment and communication plan for large phase 3 trial, including trial site identification and PI recruitment, patient recruitment, referral generation • Collaborate with advocacy groups to create and implement risk-benefit and patient preference surveys, burden of disease studies, comprehensive respiratory awareness programs, and trial protocol reviews• Represent company at scientific, clinical and advocacy conferences and secure speaking opportunities for company• Collect and report on research developments, trends, market insights, and new treatments in key therapeutic areas • Create national clinician outreach strategy of Tier 1 and 2 specialty centers, support development and execution of scientific advisory boards, and help onboard four new medical science liaisons • Assist in the development and execution of expanded access program and disease awareness campaign• Liaison for company’s participation in disease modeling, data sharing, and natural history studies

Pratteln, Basel-Country, Ch

Tucson, Arizona, Us

SERP 416 (undergraduate course) - Disability Perspectives and NarrativesSERP 580 (master's level course) - Medical Aspects of Disability and Chronic Illness

Chicago, Illinois, Us

• Coordinate and oversee MDA clinic program of 200 neuromuscular specialty clinics• Direct summer camp program and oversee 76 camp programs across country• Plan, develop, and implement first national neuromuscular clinical patient registry and assist in benchmarking of best clinical practices through clinical data collected• Develop and implement staff training related to camp, clinic, and registry programs for over 800 staff• Lead Clinical Advisory Committee and Registry Advisory Board made up of key opinion leaders and researchers across country• Facilitate Duchenne and ALS Clinic Research Network activities led by key clinical researchers in field• Mentor and train Divisional Directors of Health Care Services who liaise and provide support to thousands of families across the country• Develop and implement transitional services program and outreach to teens and young adults• Assist in planning annual national clinical conference for medical professionalsSupervise bachelors and masters-level social work interns

Chicago, Illinois, Us

• Coordinated and directed neuromuscular specialty clinics at three local hospitals• Provided diagnostic counseling, support, and education to families and clients• Developed and launched monthly support groups for adults and children with muscular dystrophy• Coordinated durable medical equipment assistance • Planned and implemented disease-specific educational seminars for families• Coordinated, planned, and directed residential summer camp program for children ages 6 through 21 with muscular dystrophy, including: theme and activity development, recruitment of all volunteer camp counselors, solicitation of in-kind and financial donations, development of risk management plans, screening of all campers and volunteers. Doubled number of children served in three years.• Referred clients to community resources available to people with chronic and terminal illness• Managed support service to clients with Amyotrophic Lateral Sclerosis/ALS

• Provided clinical social work services to outpatient developmental pediatrics department, neonatal intensive care unit follow up clinic, and Down Syndrome clinic• Conducted psychosocial assessments and medical/social histories• Helped patients and families understand, accept, and follow through with medical recommendations• Performed on-call duties, including crisis intervention in child abuse, neglect, and trauma situations• Determined eligibility for and refer families to social programs and financial assistance• Developed discharge care plans for high-risk patients• Worked with state and county child protection legal services

Doctor Of Philosophy (Phd), Rehabilitation

Masters Of Science In Social Work, Medical Social Work

Bachelor Of Science (Bs), Sociology And Psychology