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Kathleen has served as Vice President of Public Policy for the ALS Association since December of 2016. In this role, Kathleen and her three-person team are responsible for advocating with Congress and policy makers to provide more funding for ALS research across several federal agencies including the Department of Defense ALS research program, the National Institutes of Health and the National ALS Registry and Biorepository at CDC. Kathleen also advocates for Congress to pass laws to improve the quality of life for people living with ALS and their families. For example, Kathleen successfully convinced Congress to ensure that people with ALS who qualified for SSDI are immediately eligible for Medicare and to ensure protections and access to health insurance under the Affordable Care Act. Kathleen also leads special projects such as winning congressional support and funding for the National Academies study: Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life. Most recently, Kathleen has been responsible for working with physicians to lobby CMS to stop some Medicare Advantage plans from delaying, substituting equipment and denying non-invasive ventilators for people with ALS who require life support. Prior to coming to the ALS Association, Kathleen held senior level positions at the American Academy of Cardiology, the Visiting Nurse Associations, the National Association of Psychiatric Health Systems and the National Association of State Alcohol and Drug Abuse Directors.
Health Care Policy Experts
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President And CeoHealth Care Policy ExpertsWashington, Dc, Us
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Vice President Of Public PolicyAls Association Dec 2016 - Present1300 Wilson Blvd, Arlington, Va 22209The ALS Association is the only national non-profit organization fighting Lou Gehrig’s Disease on every front. Its mission is to lead the fight to treat and cure ALS through global research and nationwide advocacy, while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives. The Association works closely with its network of chapters that provide comprehensive patient services and support to the ALS community. The Association’s network plays a lead role in advocating for increased public and private support of ALS research and public policy initiatives that responds to the needs of people with ALS. Its efforts have raised the profile of ALS at the White House, among members of Congress, and within federal agencies, including the National Institutes of Health, Centers for Medicare and Medicaid Services, Food and Drug Administration, Department of Defense, Department of Veterans Affairs, Social Security Administration, and Centers for Disease Control and Prevention. Public Policy accomplishments include: • Eliminated the 24-month waiting period that people disabled with ALS had to endure before they could start receiving Medicare benefits. • Enacted the ALS Registry Act to establish the first nationwide ALS patient registry administered by the Centers for Disease Control and Prevention. • Advocated for historic regulations at the Department of Veterans Affairs that designate ALS as a service connected disease. Veterans with ALS and their survivors are now eligible for full health and disability benefits, regardless of where or when they served in the military and regardless of how soon after discharge they were diagnosed.
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President And CeoHealth Care Policy Experts Mar 2016 - Dec 2016Washington D.C. Metro Area“Policy Options and Advocacy to Advance Your Healthcare IssuesToday”Representation before Congress and Administration officials. Services include but are not limited to: access to decision makers; strategy development, creation of communications and policy materials, research and analysis, relationship building with strategic partners, grassroots and member engagement and coverage of hearings and events. Twenty years of influencing elected and government officials at the federal and state level on legislative, regulatory and policy issues in healthcare.
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Director Of Federal Affairs (Congressional And Regulatory)American College Of Cardiology May 2014 - Feb 20162400 N Street N. W., Washington, Dc 2037• Recognized for unique contributions to Federal Affairs and Advocacy Division that boosted ACC stature and influence. Oversaw all aspects of federal lobbying, grassroots advocacy, Political Action Committee and regulatory advocacy on wide range of topics including Medicare Access and CHIP Reauthorization Act (MACRA); 21st Century Cures; health information technology/ meaningful use; and regulations of the Centers for Medicare and Medicaid Services (CMS) and Food and Drug Administration. • Empowered team to achieve ongoing legislative and regulatory goals, build strategic partnerships and advance new initiatives such as introduction of legislation to expand CV rehabilitation, enhanced support for federal research and collaboration on Medicaid legislation for children with medical complexity. • Spearheaded well-attended Hill briefings on ACC’s National Clinical Data Registries (NCDR) composed of eight hospital and two outpatient registries. Co-directed strategic planning process to identify legislative and regulatory challenges/opportunities for NCDR, which delivers analysis of services and quality measurement for government, healthcare systems and clinicians. • Led effort to develop new policy on a wide range of prescription drug issues with member leaders and staff experts. Results include formation of American Medical Association physician taskforce on prescription drugs as well as meetings with high-level HHS officials, PhRma and PEW Charitable Trusts. • Increased member engagement as evidenced by record- breaking registrations for Legislative Conference and grassroots activity. Authored new tools to better engage 22 member sections in advocacy. Collaborated with directors of State Government Affairs and Payer Quality/Value Solutions. • Active staff participant in American Medical Association’s House of Delegates, AMA/Specialty Society RUC Committee and American College of Physician's Council of Subspecialty Societies. -
Vice President Of Public PolicyVisiting Nurse Associations Of America Jan 2009 - May 2014Washington D.C. Metro AreaWon a unique Medicare payment demonstration targeted to safety-net home health agencies in Affordable Care Act. Developed new hospice membership component, working to recruit members, establish policy positions and achieve measurable goals. Initiated a member-driven research report and secured positions for members on critical advisory panels of the Center for Medicare and Medicaid Services (CMS) that focused on home health and hospice reimbursement changes. Transformed member engagement resulting in improved participation in all aspects of decision making, grassroots lobbying and Legislative Conference. Formed and mobilized an unprecedented coalition of associations representing patients, physicians, hospitals and providers to advocate on access to home healthcare in Medicare and Medicaid regularly negotiating with Director of Center for Medicare at CMS. Created new State Advisory Group of state association executives to expand VNAA influence. Leveraged support from Medicaid officials on difficult regulatory issue with the result that federal government took action to resolve member and state associations concerns. Garnered new respect from Medicare Payment Advisory Committee (Med PAC), Centers for Medicare and Medicaid Services (CMS), White House and Congress by addressing complex payment and regulatory issues as well as leading the fight against fraud and abuse. Result was VNAA and its members had greater opportunities to influence decisions by policy makers.Publications: Rosati, R.J., Russell, D., Peng, T.R., Brickner, C., Kurowski, D., Christopher, MA and Sheehan, K.M. (2014). Potential Financial Disincentives for Providing Medicare Home Health Care to Vulnerable Populations, Health Affairs, doi: 10.1377/hlthaff.2013.1159. Christopher, M.A, Duhl, J., Rosati, R.J. and Sheehan, K.M (2015). Advocacy for Vulnerable Patients: How Grassroots Organizations Can Influence Health Care Policy,AJN, 115(3), 66-69.
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Executive DirectorMaryland National Capital Homecare Association Oct 2006 - Apr 2009State Association of private duty, home medical equipment providers and Medicare/Medicaid home health agencies. Successfully lobbied state legislators and officials on issues related to reimbursement, regulations, healthcare planning and workforce issues. Skillfully advocated before Congress and federal officials as a state association executive member of the National Homecare and Hospice Association, the Council of State Homecare Associations and the American Association of Homecare. Planned and directed all aspects of a state association turning $30,000 deficit into a $60,000 surplus in one year with revenue from new memberships, trainings, conferences, and vendor sponsorships. Revitalized Board, committees, and membership by developing new policy and program initiatives for 3 distinct provider groups. -
Vice President For Public Policy & PlanningAlternative Behavioral Services Oct 2005 - Oct 2006Recruited by CEO to newly created position as part of senior management to expand national treatment network of home, community-based, residential, and hospital services. Leveraged extensive network of officials, congressional leaders, researchers, and national experts with the result that ABS obtained strategic intelligence was used to expand and enhance operations and services. Pioneered 24-7 advocacy tools and educational forums on evidence-based practices, coordinated systems of care, complex reimbursement issues and health system accreditation standards. -
Director Of Government RelationsNational Association Of Psychiatric Health Systems Jan 2001 - Jan 2005Washington, DcAssociation of multi-state profit and non-profit mental health and substance abuse inpatient treatment providers.Active member of Coalition for Fairness in Mental Illness Coverage that developed and successfully advocated for the Paul Wellstone and Pete Domenici Mental Health Parity and Addiction Equity Act. Developed and directed Youth Services Leadership forums with top congressional and federal officials that proved critical in advancing priorities of newly established membership component. Successfully lobbied Congress and Department of Education to secure education reimbursement for youth in mental health facilities. Convinced federal and state leaders to revise Interstate Compact for Children to eliminate barriers to timely placement in care. Significantly expanded association's advocacy on Medicaid and initiated grassroots lobbying which proved influential in introduction of bi-partisan legislation to improve reimbursement for emergency room psychiatric care. Secured a balanced focus on acute care in activities and reports of the Presidential Commission on Mental Health. Promoted Medicare Part D drug benefit education and enrollment of patients in mental facilities. Managed NAPHS Political Action Committee.
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Director Of Public PolicyNational Association Of State Alcohol & Drug Abuse Directors Jan 1993 - Jan 2001Washington D.C.Association of 50 State Alcohol and Drug Abuse Agencies providing public prevention and treatment services.Established and grew association's status on Capitol Hill, cultivating strong bi-partisan Congressional relationships and becoming trusted advisor. Credited by congressional staff for critical role in reauthorization of Substance Abuse and Mental Health Services Administration (SAMHSA), winning NASADAD's recommendations on highly contentious issues with research, advocacy, and lobbying skill. Significantly boosted appropriation for the Substance Abuse Block Grant and NIH. Advanced agreement on contentious policy issues and stimulated new initiatives with National Institute on Alcoholism and Alcohol Abuse, National Institute on Drug Abuse, National Institute on Mental Health, National Association of State Mental Health Commissioners, and National Association of State Child Welfare Administrators. Result was achievement of shared legislative and regulatory goals as well as translation of federal research into practice. -
Director Of Public PolicyAmerican Association Of Family & Consumer Sciences Jan 1989 - Jan 1993Alexandria, VirginiaResponsible for all aspects of development and implementation of a pro-active government affairs agenda including lobbying Congress and Federal Agencies. Areas of focus include food and nutrition programs for children and families (school lunches, WIC), nutrition labeling, federal dietary guidelines and vocational education. Engaged Association leaders and chapters in strategic planning to achieve policy goals. Prepared comments on regulations, prepared policy analysis and weekly news articles as well as contributed to a monthly publication.
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State Technical Assistance CoordinatorChildren'S Defense Fund Jan 1987 - Jan 1989Washington, DcAdvocated at national and state level on issues related to childcare, adolescent health, child welfare and poverty. Responsible for development of several state coalitions to lobby for first-time authorization and appropriations for the Child Care Development Block Grant. Represented CDF in national coalitions lobbying to win the Family and Medical Leave Act. Travelled and spoke on behalf of CDF at state meetings; wrote news articles and action alerts and analyzed annual “State of the State” presentations by Governors. Researched and wrote background policy documents for both the Republican and Democratic National Conventions. After leaving CDF, continued to work with CDF on a number of issues including children's physical and mental health, poverty and child welfare. -
Administrative DirectorNational Community Action Foundation Jan 1981 - Jan 1987Washington, DcNCAF was a small startup national organization. Provided support to a team of two lobbyists on a wide range of anti-poverty issues including Community Services Block Grant, Head Start and Low Income Energy Assistance. Served as a staff liaison to the Board of Directors, 50 State Associations and other national organizations. Responsible for planning and directing annual national conference attend by over 1,000 community action agencies; creating legislative alerts and activating grassroots efforts; and implementing special projects. Worked to build and maintain relationships essential to raising funds for salaries and operations. Additionally, responsible for raising funds for Political Action Committee and ensuring compliance with all regulations. Lastly, supervised auditors.
Kathleen Sheehan Skills
Kathleen Sheehan Education Details
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Asae: Center For Association LeadershipAssociation Management -
Public Policy And Research -
Catholic UniversityPsychology And Education
Frequently Asked Questions about Kathleen Sheehan
What company does Kathleen Sheehan work for?
Kathleen Sheehan works for Health Care Policy Experts
What is Kathleen Sheehan's role at the current company?
Kathleen Sheehan's current role is President and CEO.
What is Kathleen Sheehan's email address?
Kathleen Sheehan's email address is ks****@****naa.org
What is Kathleen Sheehan's direct phone number?
Kathleen Sheehan's direct phone number is +120238*****
What schools did Kathleen Sheehan attend?
Kathleen Sheehan attended Asae: Center For Association Leadership, University Of Maryland, Catholic University.
What are some of Kathleen Sheehan's interests?
Kathleen Sheehan has interest in Health Care, Reading, Top Issues Identified Include, Spending Time With Family And Friends, Health, Children, Education, Environment, Youth And Families, Science And Quality.
What skills is Kathleen Sheehan known for?
Kathleen Sheehan has skills like Nonprofits, Leadership, Policy, Program Development, Fundraising, Healthcare, Training, Strategic Planning, Public Policy, Strategy, Government, Medicaid.
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