Chair, Board Of Trustees
CurrentCo-Chair and creator of ROSE UP – virtual fundraising campaign for the CFF raising over $550k in its first two years (2020 – present) Co-Chair and creator of BreatheCon – an annual international virtual conference for adults with cystic fibrosis (2016)Founding Chair of the Adult Advisory Council – an advisory group of adults with CF connected to the Board of Trustees of the CFF (2014-present)Patient Advocate – regular visits to Capitol Hill to meet with Congressional members and staff to advocate for health care reform (2007- present)Tour For a Cure – planned and executed a fundraising and awareness campaign for the CF Foundation. Threw out the first pitch at every Major League Baseball Stadium. Featured on Good Morning America and USA Today during the 2001 baseball season. (2001)Public Speaker- CF events across the country since age 9 (1987-present)