President
CurrentPatient Advocacy. Non-surgical treatments. A cure. Partnerships with biotech and pharmaceutical to help end the reign of HPV. A partner organization with Sanford CoRDS patient registry.
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Kim M. is listed as President at RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION, based in Bentonville, Arkansas, United States. AeroLeads shows a matched LinkedIn profile for Kim M..
Kim M. previously worked as Director Patient Engagement/Advocacy at Recurrent Respiratory Papillomatosis Foundation and Director Patient Engagement/Social Media at Recurrent Respiratory Papillomatosis Foundation.
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As President of the RRPF, my goal is to further advocate for awareness, research, treatments, and a cure for RRP, as well as advocate for HPV prevention. An especially urgent unmet need is in how we treat the pulmonary spread of the disease. HPV 6/11 are the primary HPV types found in RRP, and while typically benign, conversion to cancer does occur (especially in pulmonary patients). Currently, we have no FDA approved pharmaceutical treatments, and surgical intervention is the primary method of treatment, often resulting in 100's of OR interventions over a lifetime. The goal of a RRP Research Network is now a project undergoing construction. Ending the fragmented research and forming a focused action plan is the next goal. Join us! We can do this. The RRPF is a member of NORD, Global Genes, National HPV Roundtable, and a recipient of a Chan Zuckerberg Institute Rare As One grant. The RRPF is happy to act as an advisor for upcoming RRP/HPV studies/trials. #HPV #Gardasil #Merck #Genentech #HPVCancer #lungcancer #pediatriccancer #patientadvocacy #patientorganization #raredisease @merck @genentech
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Patient Advocacy. Non-surgical treatments. A cure. Partnerships with biotech and pharmaceutical to help end the reign of HPV. A partner organization with Sanford CoRDS patient registry.
Recurrent respiratory papilloma impacts 20K children and adults in the US. Passed vertically from a mother infected with genital HPV, the disease burden can be in the millions of dollars for those with the most aggressive disease. Currently, there is no cure, with surgical intervention the main treatment. Patients can have OR intervention counts into the several hundreds. Pulmonary metastasis of the disease leads to likely cancerous transformation as well as a high mortality rate. Systemic… Show more Recurrent respiratory papilloma impacts 20K children and adults in the US. Passed vertically from a mother infected with genital HPV, the disease burden can be in the millions of dollars for those with the most aggressive disease. Currently, there is no cure, with surgical intervention the main treatment. Patients can have OR intervention counts into the several hundreds. Pulmonary metastasis of the disease leads to likely cancerous transformation as well as a high mortality rate. Systemic Avastin is showing great promise for a possible way to maintain control of the disease, and Gardasil 9 herd immunity could end this disease one day in the future. Research in immunotherapy is also offering valuable data as we march towards a cure. Symptoms of RRP are stridor, voice quality issues, chronic cough. We would love to partner with organizations and pharmaceuticals and healthcare providers who share our mission of finding a cure, nonsurgical treatments, and herd immunity from Gardasil. Show less
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Kim M. works for RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION.
Kim M. is listed as President at RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION.
Kim M. is based in Bentonville, Arkansas, United States while working with RECURRENT RESPIRATORY PAPILLOMATOSIS FOUNDATION.
Kim M. has worked for Recurrent Respiratory Papillomatosis Foundation and National Organization For Rare Disorders.
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