Kylee Black is a social entrepreneur who is committed to cultivating community and enabling the best in others. In 2009, Kylee founded the not-for-profit ‘Spirit Sparkplugs’ in order to mobilise community awareness and support of young people with rare disease. Kylee identified a need in this area through her own journey with rare disease and, in 2011, she received an International Heart of Gold award for her contributions. In 2016 Kylee was among the first in New Zealand to find and manage her own support workforce as a user of the Government’s Enabling Good Lives initiatives which has been life changing for her. Kylee shared her own story in a video for Enabling Good Lives, which became a catalyst for building the platform she has today. Kylee takes every opportunity to use this platform to speak out about important issues facing our society. Kylee now runs her own speaking and consultancy business. In 2017, Kylee launched “The Soul Lounge” at music festival, “Festival One”, making festival accessible for ALL people to attend - even if that requires breathing machines or hospital bed, sensory space and hand holding to access festival. As an established public speaker, Kylee has addressed a variety of people within different settings, including parliament, national and international conferences, and a range of local events. Kylee’s goal is to see young people encouraged and supported in redefining their own circumstances, challengingly perceptions of how we view others and ourselves, and enabled to live the best life that they can.