Executive Director
CurrentManage operations for a non-profit organization that raises +/- $2 million/year to support a rare genetic disease.• Grow and expand a multi-faceted fundraising program comprising annual giving, major gifts, special events, grantsmanship and planned giving.• Ensure the Foundation’s financial stability by increasing revenue and monitoring expenditures.• Oversee all aspects of day-to-day operations, including office administration, compliance, finance, legal and human resources.• Manage the board of directors, including recruiting, cultivating, soliciting and stewarding board members, as well as coordinating board activities such as planning and leading meetings, forming and staffing board committees.• Cultivate and steward relationships with multiple stakeholders including patients, parents and other relatives, donors, a dedicated medical clinic, local and international chapters and a scientific advisory board.• Shape the Foundation’s public presence through effective utilization of written and electronic communications• Build, train, motivate and oversee a team of staff and volunteers to support the Foundation’s activities.