Lenka Hajgajda Email and Phone Number
I co-founded the nonprofit after our son was diagnosed with Angelman Syndrome in 2018. It is a rare genetic disorder. Around 100 patients are diagnosed in the Czech Republic. Our son's diagnosis causes mental retardation, impaired motor skills, absence of speech, difficulties with coordination and stability, epileptic seizures and other unfortunate symptoms. He will be dependent on the help of another person for his entire life.The Gene Therapy Association, a non-profit organization, is a link in the world of science, medicine and patients. I communicate with patients, world-class scientists, representatives of the Ministry of Health, representatives of professional societies and last but not least the general public. All this in understandable human language.Managing projects to raise awareness of rare diseases, managing social media, websites, writing press releases and articles has thus become my daily favourite activity, where I capitalize on my 10 years of experience as ISO Systems Sales and Training Manager.
Association Of Gene Therapy
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Ceo & Co-Founder At Ngo Association Of Gene TherapyAssociation Of Gene Therapy Jul 2018 - PresentCzech Republic -
Board MemberThe Rare Diseases Czech Republic | Rdcr Sep 2024 - PresentČeskoI advocate for the interests of patients with rare diseases in the areas of research and access to innovative treatment.
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Marketing SpecialistDnv Jan 2021 - PresentPrague- website management - social media management - LinkedIn -
Sales & Training ManagerDnv Gl Business Assurance Czech Republic Nov 2009 - Dec 2020Prague− Key account management (20%), acquisition of new clients (65%), leading (10%), marketing (5%);− An increasing of Training sales results of 130% during 2 years;− Annual personal certification sales target fulfilment on 105% and more;− Management, controlling and motivating of administration supporting staff;− Consultative sales of ISO certification services;− Developing and keeping long lasting business relationships with all clients;− Assuring the contract terms, commercial conditions negotiations;− Active search for new B2B customers within given region and industry (broad range of industries - IT, energy, healthcare, food, logistic, automotive, railway);− Analysis, reports and sales budgets responsibility;− Organisation of conferences for broad industry sectors;− Marketing - promoting company on websites; once a year organisation of Clients events.− Strong orientation on client, finding customized solutions;− Negotiations with representatives on all company structure levels (CEO, Technical directors, Quality managers, HRs).
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Project ManagerXpool A.S. Apr 2009 - Oct 2009Prague− Responsibility for the Registration project;− Internal mentoring for the other projects leading;− Coordination of systems’ changes; − Leading Call center team;− Mutual communication management between clients and suppliers.
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Assistant To The CeoMed-Media, Spol. S R.O. Jan 2008 - Mar 2009Prague− Coordinating daily work agenda;− Assisting with scheduling of appointments and events;− Participation in local implementation projects;− Preparation of accounting documents in the program ExWin, treatment reminders;− The Staff Recruitment role.
Lenka Hajgajda Education Details
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Management And Economic Of Transport And Telecommunication -
Technologie A Řízení Výroby
Frequently Asked Questions about Lenka Hajgajda
What company does Lenka Hajgajda work for?
Lenka Hajgajda works for Association Of Gene Therapy
What is Lenka Hajgajda's role at the current company?
Lenka Hajgajda's current role is CEO and Co-founder of NGO Association of Gene Therapy | Fundraiser | PR communication | Marketing specialist.
What schools did Lenka Hajgajda attend?
Lenka Hajgajda attended Czech Technical University In Prague, Technická Univerzita V Liberci.
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