Mirthe Klein Haneveld Email & Phone Number

Utrecht, Netherlands

PhD trajectory aiming to improve evidence-based clinical practice guideline development for rare genetic syndromes, with special attention to the inclusion of experiential knowledge, within the European Reference Network ITHACA for rare malformation syndromes and rare intellectual and neurodevelopmental disorders.

Clinical practice guideline development for rare malformation syndromes and rare intellectual and other neurodevelopmental disorders.

Organizing and supervising recreational activities and short stay care for children with multiple disabilities.

- Conducting survival analyses in R using the population-based Dutch MEN1 Study Group database in order to evaluate the occurrence of (clinically relevant) non-functioning pancreatic tumours in young MEN1 patients to inform screening recommendations. Published in Journal of Clinical Endocrinology and Metabolism.- Qualitative study into the lived.

Rotation in in-hospital consultation and outpatient rehabilitation clinic. Assignment: functional prognosis in children with vincristin-induced polyneuropathy.

Senior clinical rotation at the inpatient internal medicine and oncology wards.

Supporting the implementation of online access to the patient files in primary care as staff of the patient helpdesk and consultant to 15 local primary care practices.

Analysis of interviews with medical specialists, patient focus groups and medical records in order to contribute to improvement of care for rare rheumatic diseases in The Netherlands. Publication in Rheumatology Advances in Practice.

Ma, Zorgethiek En Beleid, Cum Laude Behaald

Master's focused on thinking about the moral good in practices of care grounded in philosophical theory and qualitative-empirical.

Msc/Md, Selective Utrecht Medical Master (Summa): Medicine, Clinical Research, Cum Laude (Grade 8.5)

Activities and Societies: Introduction committee; Teddy Bear Hospital; SUMMA Peer Support; digital editorial support Medisch Contact/Arts.

Bsc, Liberal Arts & Sciences, Summa Cum Laude Behaald

Activities and Societies: Science Focus Group; AUC Medical Career Committee; peer reviewer student research journals InPrint and Science.

Postgraduate Msc, Epidemiologie (Epidm)

Keuzevakken: Causal inference and propensity score methods, Multilevel modellen en longitudinale data-analyse, Doelmatigheidsonderzoek.