Founder And Publisher
CurrentFounded and manage the day to day operations of CheckRare, a learning platform for health care professionals and patients. Our website and online platform allows users to gain insight and learn about rare diseases, current and emerging therapies, clinical trials, and the BioPharma companies behind them. Our peer-to-peer content is a trusted source for education and industry-related content. CheckRare focuses on rare diseases and orphan drugs. In the United States, a rare disease is defined as an illness that affects fewer than 200,000 people. Although rare diseases affect 1 in 10 Americans, over 30 million people in the United States, and 350 million people in the world have a rare disease. According to the U.S. Department of Health and Human Services and the National Institutes of Health, there are about 7,000 rare diseases and about 95% of all rare diseases do not have an FDA approved drug treatment.CheckRare provides clinical updates and practical information that focuses on diagnosing and treating patients with rare diseases and cancers. Our areas of focus include:- Insight on rare diseases and orphan drugs- Diagnosing and treating rare diseases- Current and emerging treatment options- Clinical trial updates- Genetic and diagnostic testing