Rachael Stevenson

Rachael Stevenson Email and Phone Number

Charity Leader | Rare Disease Patient Advocate | Rare Patient Registry development| Rare clinical trials recruitment @ Reverse Rett
Rachael Stevenson's Location
United Kingdom, United Kingdom
Rachael Stevenson's Contact Details

Rachael Stevenson work email

Rachael Stevenson personal email

n/a
About Rachael Stevenson

I am parent of an exceptional young woman who has Rett Syndrome. In 2010, I co-founded Reverse Rett, a UK patient adovocacy and research organisation focused on accelerating treatments and a cure for Rett and have been CEO ever since.

Rachael Stevenson's Current Company Details
Reverse Rett

Reverse Rett

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Charity Leader | Rare Disease Patient Advocate | Rare Patient Registry development| Rare clinical trials recruitment
Rachael Stevenson Work Experience Details
  • Reverse Rett
    Chief Executive Officer
    Reverse Rett Jul 2010 - Present
    Manchester, England, Gb
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  • Rett Syndrome Research Trust
    Member Board Of Trustees
    Rett Syndrome Research Trust Apr 2013 - Present
    I serve on the Board of Trustees for the Rett Syndrome Research Trust US. Please see here for more details: http://www.rsrt.org/about-rsrt/leadership/
  • Washington Pave
    Assistant Director
    Washington Pave Aug 2000 - Jun 2003
    Washington PAVE is a state-wide advocacy organisation for families of children and adults with disabilities. As Family Resource Co-ordinator for the STOMP Project, my role was to empower military families to advocate for their children re education and medical issues and to liaise with clinicians, school districts and other professionals as needed. I regularly traveled both nationally and internationally to provide workshops and presentations teaching local community professionals and families to better understand regulations re their rights and responsibilities.
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Rachael Stevenson Skills

Management Community Development Event Management Non Profits Program Evaluation Leadership Development Teaching Grant Writing Community Outreach Public Health Social Services Capacity Building Project Planning Policy Analysis Creative Writing Press Releases International Development Social Networking Team Building Government Media Relations Nonprofits Powerpoint Mental Health Social Media

Rachael Stevenson Education Details

  • Bath Spa University
    Bath Spa University
    Creative Writing
  • Ruskin College, Oxford
    Ruskin College, Oxford
    Cert. He English And Creative Writing

Frequently Asked Questions about Rachael Stevenson

What company does Rachael Stevenson work for?

Rachael Stevenson works for Reverse Rett

What is Rachael Stevenson's role at the current company?

Rachael Stevenson's current role is Charity Leader | Rare Disease Patient Advocate | Rare Patient Registry development| Rare clinical trials recruitment.

What is Rachael Stevenson's email address?

Rachael Stevenson's email address is ra****@****.org.uk

What schools did Rachael Stevenson attend?

Rachael Stevenson attended Bath Spa University, Ruskin College, Oxford.

What skills is Rachael Stevenson known for?

Rachael Stevenson has skills like Management, Community Development, Event Management, Non Profits, Program Evaluation, Leadership Development, Teaching, Grant Writing, Community Outreach, Public Health, Social Services, Capacity Building.

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