Clarion I. is a consultant to organisations and initiatives around the world in their quests to bring about lasting change on today’s most pressing issues in health. Examples of work below. More here: www.clarioni.com o Supporting the World Health Organisation’s efforts to fight COVID-19 infodemic through effective community engagement and amplification of key messages; o Supporting the Chan Zuckerberg's Initiative's Rare as One Project, acting as their International Strategist; o Helping to shape strategy and content re: the International Experience Exchange for Patient Organisations #IEEPO, as the Chair of this amazing initiative;o Building an international liver cancer network from the ground up to strengthen the community and catalyse efforts in the space;o Developing and implementing communications & engagement strategies for the Task Force for Global Health's viral hepatitis elimination programme (CGHE) o Advising the Global Sepsis Alliance’s leadership with regards to strategy, policy, funding and governance; o Being (handpicked to be) a judge for the MITSOLVE Challenge on Rare Diseases (2022);o Mentoring the CEO of the World Hepatitis Alliance/ guiding board discussions.

Assessed the most promising solutions to the Challenge through several rounds of evaluation

Responsible for the overall strategy and operations for the World Hepatitis Alliance programmes, partnership developments, fundraising and fulfilment of its mission. ** As a result of our advocacy work, 194 governments committed in 2016 to eliminating viral hepatitis by 2030. Together with our members and key partners, I led the charge to ensure the world delivers on this commitment by: 1. Ensuring that the voices of viral hepatitis patients are at the forefront of national and globalhealth discussions2. Providing global leadership in advocating for a higher profile and priority for viral hepatitis 3. Raising awareness, particularly through World Hepatitis Day and Nohep, our global elimination movement4. Working with the World Health Organization, their regional offices and other key partners to support governments in combating viral hepatitis5. Working directly with governments to help them establish/implement effective national strategies6. Supporting national hepatitis NGOs with capacity & capability building7. Reducing the stigma & discrimination associated with chronic viral hepatitis by improving education8. Fighting for access to testing, treatment and care for all (ensuring no group is left behind; children, indigenous communities, prisoners, IDUs, migrants etc.) 9. Working with key stakeholders in the area of access to diagnostics, vaccines and new therapies 10. Advancing WHA as an influencer and advocate among leaders in international health11.Fostering important partnerships 12.Ensuring WHA’s team is integrated and motivated to deliver ambitious projects and above all, abiding by WHA's core values: Make a Difference, Ambition, Integrity, Trust. ** As the CEO of WHA, I was also a member of Medicines Patent Pool Expert Advisory Group on hepatitis (providing advice to both MPP's management team and Board on public health strategies and clinical needs relating to their work and license agreements on hepatitis).

Responsible for seven key areas: 1. Organisation's Visibility & Profile: serving as one of the public faces and key spokespeople for the World Hepatitis Alliance, representing it with credibility and enthusiasm2. HR: managing the Alliance's team, while overseeing the running of the office as a whole3. Reporting: producing the organisation’s Annual Report of activities 4. Partnerships: developing and sustaining relationships with key stakeholders5. Communications: overseeing the coordination of World Hepatitis Day6. Capacity and capability building: working with groups to support their advocacy efforts at national/ regional levels7. Policy: working with governments, the World Health Organisation and other key parties to establish/implement national strategies for viral hepatitis

Responsible for supporting the then recently formed hepatitis unit by:1. Briefing WHO about the hepatitis community, representing the patient voice at key meetings and facilitating important connections 2. Organising/coordinating a high level satellite meeting on hepatitis with the Brazilian Ministry of Health (66th World Health Assembly in 2013)3. Supporting the Brazilian Ministry of Health with the drafting, development & adoption of a new hepatitis resolution (unanimously ratified during the 67th World Health Assembly, 2014)4. Creating/implementing a communications plan, focusing on strengthening partnerships (internal/external) and raising the profile of the Program (incl. developing new communication tools and doing a website review)5. Supporting WHO’s central communications team with respect to the coordination of World Hepatitis Day

Responsible for helping build the organisation's awareness/profile by: 1. Working with/developing case studies for the media2. Organising awareness raising events3. Acting as a spokesperson of the organisation4. Establishing key partnerships