Renata Watts Frsa Email & Phone Number

The provision of palliative care for children and young people across Hertfordshire requires an integrated, multi-agency approach. Children's and young people’s palliative care should not be seen in isolation, but as part of the wider development of children’s services A multi-agency Network has been established to develop an integrated multi-agency.

St Albans

I'm a passionate advocate for families of children with undiagnosed genetic conditions, complex medical needs and both special educational needs as well as physical disabilities. I have an established reputation for being an effective problem solver and planner, helping charities find new directions and become effective communicators. I have had a.

I write about NHS, undiagnosed children, SEN, medically complex and disabled children.

I joined the PCIB with the aim of helping to improve communication between Children Schools and Families/NHS Hertfordshire and parents and carers of children with disabilities.The Board seeks to work in partnership with statutory and voluntary agencies to improve services for disabled children in Hertfordshire. They aim to ensure that the voices of parents.

SWAN UK is a project run by Genetic Alliance UK which aims to offer support and information to parents of children with undiagnosed genetic conditions. I'm currently helping develop their profile online and have developed and run the SWAN Blog Post Awards including designing the logos. I have also designed the logo for Undiagnosed Children's Awareness Day.

Hertfordshire

CONCORD is funded by the NIHR Health Services and Delivery Research programme, and will run until the end of November 2020. The aims of this study are to use quantitative and qualitative research methods to investigate how care of people with rare diseases is co-ordinated in the UK and how patients and families affected by rare diseases and health care.

London, United Kingdom

The Hidden Costs project is a feasibility study to prepare the ground for a full scale research project. We anticipate that the research questions for a full scale project will be:* What is the economic cost of coordinating versus not coordinating rare disease services within the NHS? The question includes costs to the NHS and to patients themselves.* Is.

UCL

UCL is the largest post-graduate clinical psychology training course in the UK, with 42 trainee clinical psychologists per year (+8 international trainees), 126 in total. The service user and carer committee was set up to gain a different perspective on a wide range of areas relating to the running of the course.

University Of Hertfordshire

The ENHANCE study stands for “Enhancing resilience and self-efficacy in the families of children with complex health needs and disabilities: sharing and embedding lessons from the Family Nurse partnership.”Research to date demonstrates that families experience physical, social and emotional stress in coping with day-to-day living with their disabled child.

West Herts Hospitals

The Patient Advice and Liaison Service was just being established in the West Herts Hospitals at the time I took the job. Looked after Watford General Hospital, Hemel Hempstead Hospital and Mount Vernon.

English With Drama Ba (Hons)

Paramedic Science Bsc (Hons)

Gcses And A Levels