Scleroderma Victoria Inc Email & Phone Number

SCLERODERMA VICTORIAScleroderma Victoria Incorporated began in 1979, some 43 years ago, to support people to live with Systemic Sclerosis. Scleroderma Victoria Inc is a non-profit organization providing member support throughout Victoria. Our mission is to:* provide support to those living with scleroderma, their families, carers and friends;* promote community awareness of scleroderma;* support research into better treatments for all people with this chronic illness.Scleroderma Victoria is run by a Committee of dedicated volunteers whom assist our members by:* publishing quarterly newsletters;* providing information and support via our website and Facebook;* growing a network of support groups located throughout Melbourne and regional Victoria;* funding and organising education, awareness and fundraising events;* supporting specialists and medical practitioners to build expertise in managing this chronic illness.Keep up-to-date on events and other happenings via www.sclerodermavictoria.com.au and on Facebook.Become a member!Why not become a member and support our great organisation. As we are all volunteers, all proceeds go to achieving our aim of finding a cure to this disease. Send an email to: enq@sclerodermavictoria.com.au and all membership details will be sent to you.Specialties:Patient Support, Patient Education, FundraisingWebsite:http://www.sclerodermavic.com.auIndustryNonprofit Organization ManagementTypeNonprofitHeadquartersSt Vincent's Hospital41 Victoria PdeFitzroy VIC 3065Company Size1-10 employeesFounded1979

Listed skills include Project Management, Consulting, and Volunteer Management.

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  What Is Scleroderma?

  Scleroderma Victoria Inc

  Jan 1979 - Present - Fitzroy, Melbourne

  Scleroderma, or systemic sclerosis (SSc), is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases.One of the hallmarks is the thickening or hardening of the skin. This is literally what the word means in Greek (sclero=hard, derma=skin). However, the term systemic sclerosis indicates that (a) it is a systemic disease, that is, it may affect many parts of the body, and (b) sclerosis is the medical term for the thickening or hardening of the tissues, which is a major part of this condition.Scleroderma can cause serious damage to internal organs including the lungs, heart, kidneys, esophagus, and gastrointestinal tract. As such, it is often referred to as a “multi-system” disease. It can be life-threatening. Scleroderma is three to four times more prevalent in women.Scleroderma is not contagious, it is not infectious, and it is not cancerous or malignant.

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  St Vincent'S Hospital Melbourne Aust

  Non-Profit/Public/Organizational Management