Seth D. Ginsberg Email & Phone Number

Seth is a pioneer in health advocacy, dedicated to making support accessible and community-focused. Often referred to as "every patient's friend," Seth champions patient-driven health outcomes and is a globally recognized expert in technology that empowers patient advocacy. As a patient and social entrepreneur, he believes in achieving global patient-driven outcomes through collaboration and research.CreakyJoints.org, co-founded by Seth and Louis Tharp in 1999, is an international network fostering informed conversations and contributions for better patient and caregiver outcomes. Under Seth's leadership, the Global Healthy Living Foundation (GHLF) has become a leading organization in health advocacy and patient empowerment. GHLF provides a global and local platform for consumer and peer-reviewed research, delivering the latest evidence-based information on issues critical to chronic disease and immunocompromised patients.Seth regularly engages with the FDA, CDC, and regulatory bodies worldwide, such as the PBAC in Australia. Among his most significant innovations are CreakyJoints, PatientSpot (formerly ArthritisPower, originally funded by PCORI), PainSpot, and the global COVID-19 Patient Support Program for immunocompromised patients and their families. These and other GHLF programs engage more than a million patients per month.Seth hosts forums, events, programs, and campaigns around the world. He recently chaired the J-Forum of patient advocacy groups in Tokyo—a first of its kind—formerly hosted the e-Advocacy Summit in Washington, DC, and headlined the COVID-19 lockdown Elvis-themed digital BINGO game for patients globally—also a first of its kind.In his 25 years of driving these innovative projects, Seth has never solicited donations from patients or charged them fees. All resources for these patient-centered activities have been sourced from life science companies, government contracts, grants, awards, and private foundation funding. This unwavering commitment ensures that patients receive the support they need without any financial burden - especially when so many patients in the U.S. are already overburdened by a healthcare system that, to many, feels like it is working 'against the patient'. Seth leads the charge to fix this!

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  Co-Founder And President

  Global Healthy Living Foundation

  Oct 1999 - Present - Greater New York City Area

  Global Healthy Living Foundation (GHLF) is a 501(c)(3) organization Ginsberg co-founded, dedicated to improving the lives of people with chronic diseases and their families. GHLF partners with life science companies, government entities, private foundations, and other organizations to innovate patient-centered programs and tools based on patients' lived experiences. Our efforts lead to improved health outcomes, reduced healthcare costs, and high-value patient advocacy across various chronic diseases.Education: Our podcast network, with over 20 shows, has garnered 750,000 listens and 3.5 million YouTube views since 2021. Listen here: https://ghlf.org/patient-education/listen/.Support: PainSpot by CreakyJoints helps individuals understand their health for faster diagnosis and treatment. This innovative algorithm-based tool provides potential diagnoses and educational support. Learn more at PainSpot.org.Advocacy: GHLF’s 50-State Network includes 1,600+ trained patient advocates across the U.S., actively engaging in health policy to promote access, affordability, and transparency.Research: PatientSpot, an enhanced omni-disease platform, supports patients with chronic diseases. Funded by PCORI, it boasts over 60 publications and 45,000+ active users who log outcomes and participate in remote monitoring. Discover more at: https://www.youtube.com/watch?v=L9hxrg5dzOY.Disease areas of focus: rheumatology, dermatology, gastroenterology, neurology, pulmonology, rare disease and adult vaccinations.www.GHLF.orgwww.GHLF.org.es www.GHLF.org.au www.CreakyJoints.org www.CreakyJoints.org.es www.CreakyJoints.org.auwww.CreakyJoints.ca www.PatientSpot.org www.50StateNetwork.org www.PainSpot.org

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  Babson College

  Social Entrepreneurship