Sierra Domb Email & Phone Number

Visual Snow Syndrome Activist • Trailblazer in Neuroscience, Philanthropy, and Communication • Intl. Advisory Board, Columbia-WHO Center for Global Mental Health • TEDx Speaker • UMiami 30 Under 30 Award-Winner • Author and Collaborator at Oxford MindfulnessMy nonprofit organization, Visual Snow Initiative (VSI), is dedicated to global awareness, education, resources, patient advocacy, treatment development, and research for Visual Snow Syndrome (VSS). I work diligently to facilitate collaborations between physicians and academic institutions, develop solutions alongside researchers, make neuroscience more palatable for everyone regardless of age or health literacy, and help people affected by VSS worldwide.VSI funded critical research in 7 different countries that led to the clinical, scientific acceptance of VSS as a distinct, neurological condition (with both visual and non-visual symptoms), discoveries regarding the biological basis and pathophysiology of VSS, as well as the development of treatments for VSS symptoms where none existed. VSI developed the first Diagnostic Criteria for VSS, created the first Global Directory of VSS Physicians, produced hundreds of educational videos about VSS for healthcare professionals and patients, established newfound awareness for VSS through multimedia content, and created physician-patient resources to improve health literacy, communication, and education regarding VSS. My team and I also organized the first Visual Snow Conference at University of California, San Francisco.Passionate about empowering others to overcome adversity, with expertise in communication studies, behavioral sciences, and qualitative data analysis, I strive to foster a more accessible, educated, inclusive, and supportive world for individuals affected by VSS.Personal website: www.sierradomb.comOrganization website: www.visualsnowinitiative.org

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  University Of Miami

  Behavioral Science • Health, Intercultural, Organizational Communication • Qualitative Data Analysis