Simone Kumar

Simone Kumar Email and Phone Number

Life Science student @ University of Toronto (Scarborough Campus) @ RareKids-CAN
Simone Kumar's Location
Scarborough, Ontario, Canada, Canada
About Simone Kumar

As a passionate advocate for healthcare equity and patient-centered research, I am driven by a commitment to support communities and improve healthcare experiences for individuals with rare diseases and disabilities. Currently, I work as a Young Adult Patient Partner with RareKids-CAN, where I collaborate with researchers, healthcare professionals, and other advocates to create meaningful, patient-centered improvements in transitioning from pediatric to adult care. This role allows me to use my personal insights to enhance study design, ensure respectful and inclusive data collection, and contribute to clinical trials and research focused on the youth experience.Alongside this, I am the Secretary of the University of Toronto Accessibility Awareness Club, where I help build a welcoming community for students to discuss disability issues and support one another through organized events and initiatives. In my work as a Peer Educator with the Wellness Peer Program, I focus on substance awareness, leading workshops that educate on safer practices and health impacts, creating an open space for learning and support.As an intern at Scleroderma United, I am furthering my experience in healthcare advocacy by leading awareness and fundraising campaigns that strengthen my skills in advocacy, community engagement, and project management. These experiences reflect my dedication to raising awareness, supporting research, and implementing change for people living with rare and chronic conditions.Looking ahead, I’m exploring a path toward healthcare that combines my commitment to patient care with a strong interest in research. I’m eager to continue developing skills that bridge patient advocacy with meaningful, evidence-based advancements in healthcare.

Simone Kumar's Current Company Details
RareKids-CAN

Rarekids-Can

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Life Science student @ University of Toronto (Scarborough Campus)
Simone Kumar Work Experience Details
  • Rarekids-Can
    Patient Partner
    Rarekids-Can Oct 2024 - Present
    Greater Toronto And Hamilton Area, Ontario, Canada
    As a Young Adult Patient Partner on the Transition Research Team, I work alongside healthcare professionals, researchers, and patient advocates to improve the transition experience for young adults with rare diseases moving from pediatric to adult care. In this role, I bring my personal insights to advise on study design, provide feedback on essential documents like consent forms and questionnaires, and help develop inclusive interview guides to ensure sensitive, accurate data collection. I also support research and clinical trials focused on transitioning youth and contribute to making our study materials clear, respectful, and patient-centered. Working with such a dedicated team is a meaningful opportunity, and I hope to advocate for impactful changes in rare disease care.
  • University Of Toronto Accessibility Awareness Club
    Secretary
    University Of Toronto Accessibility Awareness Club Sep 2024 - Present
    Toronto, Ontario, Canada
    The University of Toronto Accessibility Awareness club is dedicated to increasing the awareness of disability issues by fostering discussions, creating a community and supporting other students. As the secretary, I coordinate and manage all club communications and administrative tasks. My responsibilities include scheduling meetings, recording and distributing meeting minutes, and overseeing the club’s email communications. I send out welcome emails, updates, and communicate with other departments at UofT in order to collaborate on the promotion of events, elections and other initiatives.
  • Wellness Peer Program
    Peer Educator
    Wellness Peer Program Sep 2024 - Present
    Toronto, Ontario, Canada
    As a peer educator, I am apart of the substance awareness team. I will focus on curating health-focused workshops, projects, and events that teach UTSC students about safer alcohol/substance use, gambling, peer pressure, and how mental/physical health can be impacted by addictions.
  • Scleroderma United
    Intern
    Scleroderma United Sep 2024 - Present
    Toronto, Ontario, Canada
    Leading an Amplified Awareness Area Campaign: I'll be planning and executing a grassroots marketing campaign to raise awareness on key issues within the community, enhancing my strategic thinking, communication, and advocacy skills.Managing a Personal Fundraising Campaign: I'll develop and implement innovative fundraising strategies to support Scleroderma United, gaining valuable experience in fundraising, project management, and community engagement.Building a Patient Advocate Portfolio: Throughout the internship, I will create a comprehensive portfolio showcasing my knowledge and commitment as a patient advocate, including at least one published article that reflects my passion for making a difference.
  • Rare Disease Foundation
    General Member
    Rare Disease Foundation Sep 2024 - Present
    Toronto, Ontario, Canada
    As a general member of the Rare Disease Foundation Club, I will be responsible for raising awareness about rare diseases and supporting the organization by volunteering at panel discussions, tabling events, and community outreach initiatives
  • Toronto Rehabilitation Institute
    Summer Research Student
    Toronto Rehabilitation Institute May 2024 - Present
    Working with a team to systematically investigate each of the potential causes of damage to mobility devices and to create a set of resources to reduce the risk of damage.Developing surveys and interviewing individuals with lived experiencesCollecting and analysing data of minimum foot clearances to better understand tripping hazards in outdoor environments

Simone Kumar Education Details

Frequently Asked Questions about Simone Kumar

What company does Simone Kumar work for?

Simone Kumar works for Rarekids-Can

What is Simone Kumar's role at the current company?

Simone Kumar's current role is Life Science student @ University of Toronto (Scarborough Campus).

What schools did Simone Kumar attend?

Simone Kumar attended University Of Toronto Scarborough, R.h King Academy.

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