Simone Kumar
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Simone Kumar Email & Phone Number

Patient partner at RareKids-CAN
Location: Scarborough, Ontario, Canada 6 work roles 2 schools
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✓ Verified July 2026 3 data sources Profile completeness 86%

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Current company
Role
Patient partner
Location
Scarborough, Ontario, Canada

Who is Simone Kumar? Overview

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Simone Kumar is listed as Patient partner at RareKids-CAN, based in Scarborough, Ontario, Canada. AeroLeads shows a matched LinkedIn profile for Simone Kumar.

Simone Kumar previously worked as Secretary at University Of Toronto Accessibility Awareness Club and Peer Educator at Wellness Peer Program. Simone Kumar holds Honours Bachelor Of Science (Hbsc), Life Science from University Of Toronto Scarborough.

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RareKids-CAN

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Profile bio

About Simone Kumar

As a passionate advocate for healthcare equity and patient-centered research, I am driven by a commitment to support communities and improve healthcare experiences for individuals with rare diseases and disabilities. Currently, I work as a Young Adult Patient Partner with RareKids-CAN, where I collaborate with researchers, healthcare professionals, and other advocates to create meaningful, patient-centered improvements in transitioning from pediatric to adult care. This role allows me to use my personal insights to enhance study design, ensure respectful and inclusive data collection, and contribute to clinical trials and research focused on the youth experience.Alongside this, I am the Secretary of the University of Toronto Accessibility Awareness Club, where I help build a welcoming community for students to discuss disability issues and support one another through organized events and initiatives. In my work as a Peer Educator with the Wellness Peer Program, I focus on substance awareness, leading workshops that educate on safer practices and health impacts, creating an open space for learning and support.As an intern at Scleroderma United, I am furthering my experience in healthcare advocacy by leading awareness and fundraising campaigns that strengthen my skills in advocacy, community engagement, and project management. These experiences reflect my dedication to raising awareness, supporting research, and implementing change for people living with rare and chronic conditions.Looking ahead, I’m exploring a path toward healthcare that combines my commitment to patient care with a strong interest in research. I’m eager to continue developing skills that bridge patient advocacy with meaningful, evidence-based advancements in healthcare.

Current workplace

Simone Kumar's current company

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RareKids-CAN
Rarekids-Can
Patient partner
AeroLeads page
6 roles

Simone Kumar work experience

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Patient Partner

Current

Greater Toronto And Hamilton Area, Ontario, Canada

As a Young Adult Patient Partner on the Transition Research Team, I work alongside healthcare professionals, researchers, and patient advocates to improve the transition experience for young adults with rare diseases moving from pediatric to adult care. In this role, I bring my personal insights to advise on study design, provide feedback on essential documents like consent forms and questionnaires, and help develop inclusive interview guides to ensure sensitive, accurate data collection. I also support research and clinical trials focused on transitioning youth and contribute to making our study materials clear, respectful, and patient-centered. Working with such a dedicated team is a meaningful opportunity, and I hope to advocate for impactful changes in rare disease care.

Oct 2024 - Present

Secretary

Toronto, Ontario, Canada

The University of Toronto Accessibility Awareness club is dedicated to increasing the awareness of disability issues by fostering discussions, creating a community and supporting other students. As the secretary, I coordinate and manage all club communications and administrative tasks. My responsibilities include scheduling meetings, recording and distributing meeting minutes, and overseeing the club’s email communications. I send out welcome emails, updates, and communicate with other departments at UofT in order to collaborate on the promotion of events, elections and other initiatives.

Peer Educator

Wellness Peer Program

Toronto, Ontario, Canada

As a peer educator, I am apart of the substance awareness team. I will focus on curating health-focused workshops, projects, and events that teach UTSC students about safer alcohol/substance use, gambling, peer pressure, and how mental/physical health can be impacted by addictions.

Intern

Toronto, Ontario, Canada

Leading an Amplified Awareness Area Campaign: I'll be planning and executing a grassroots marketing campaign to raise awareness on key issues within the community, enhancing my strategic thinking, communication, and advocacy skills.Managing a Personal Fundraising Campaign: I'll develop and implement innovative fundraising strategies to support Scleroderma United, gaining valuable experience in fundraising, project management, and community engagement.Building a Patient Advocate Portfolio: Throughout the internship, I will create a comprehensive portfolio showcasing my knowledge and commitment as a patient advocate, including at least one published article that reflects my passion for making a difference.

General Member

Rare Disease Foundation

Toronto, Ontario, Canada

As a general member of the Rare Disease Foundation Club, I will be responsible for raising awareness about rare diseases and supporting the organization by volunteering at panel discussions, tabling events, and community outreach initiatives

Summer Research Student

Working with a team to systematically investigate each of the potential causes of damage to mobility devices and to create a set of resources to reduce the risk of damage.Developing surveys and interviewing individuals with lived experiencesCollecting and analysing data of minimum foot clearances to better understand tripping hazards in outdoor environments

2 education records

Simone Kumar education

Ontario Secondary School Diploma

R.H King Academy
FAQ

Frequently asked questions about Simone Kumar

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What company does Simone Kumar work for?

Simone Kumar works for RareKids-CAN.

What is Simone Kumar's role at RareKids-CAN?

Simone Kumar is listed as Patient partner at RareKids-CAN.

Where is Simone Kumar based?

Simone Kumar is based in Scarborough, Ontario, Canada while working with RareKids-CAN.

What companies has Simone Kumar worked for?

Simone Kumar has worked for Rarekids-Can, University Of Toronto Accessibility Awareness Club, Wellness Peer Program, Scleroderma United, and Rare Disease Foundation.

How can I contact Simone Kumar?

You can use AeroLeads to view verified contact signals for Simone Kumar at RareKids-CAN, including work email, phone, and LinkedIn data when available.

What schools did Simone Kumar attend?

Simone Kumar holds Honours Bachelor Of Science (Hbsc), Life Science from University Of Toronto Scarborough.

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