Sue Kahn Email & Phone Number

Brookline, MA, US

The goal of the "Funding Models to Support the Spectrum of Rare Diseases Research and Development" Task Force is to identify how different types of funders make decisions about when to fund at a given stage in a treatment's development and the factors that contribute to this process.

I am an experienced professional in the healthcare business and nonprofit sectors. Having held leadership positions in genetic testing and medical devices companies as well as a non-profit rare disease patient advocacy and research organization, I have a unique perspective on the evolving patient-centric healthcare landscape and have strong relationships.

I am a mentor for two patient organizations, meeting with the leadership on a regular basis to support them in reaching their goals. Faster Cures partners with the Chan Zuckerberg Rare as One Mentorship Program to provide funding, tools and capacity-building support and training for patient-led rare disease organizations. The program provides funding.

Greater Boston

As an ESC Consultant, I work to enhance the impact and overall effectiveness of the New England nonprofit community. We work in multidisciplinary consulting teams with our nonprofit clients who are seeking recommendations with strategy, operations, governance, or other issues.

Lexington, Massachusetts, United States

LogicBio Therapeutics is a clinical-stage genetic medicine company pioneering genome editing and gene delivery platforms to address rare and serious diseases from infancy through adulthood. The company's genome editing platform, GeneRide™, is a new approach to precise gene insertion harnessing a cell's natural DNA repair process potentially leading to.

Boston, MA

The mission of NTSAD is to "lead the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1 and Sandhoff diseases by driving research, forging collaboration and fostering community. Supporting families is the center of everything we do". Responsible for overall strategic direction and operations for NTSAD’s staff, programs, and execution of its mission..

BioPontis Alliance for Rare Diseases is a niche, international philanthropic organization bringing a professional drug discovery and development engine to help fill the therapy void for rare diseases, 95% of which have no treatment. The organization is entering into innovative joint ventures with patient organizations and academia that are designed to.

Member of Senior Management Team. Responsible for leading initiatives to develop new business opportunities, acquisition and partnering strategies, new product and technology assessment, technology licensing. Highlights include:- Evaluated and negotiation collaboration to access emerging molecular technology. Led process to complete deal with legal and.

I also held roles as the Service Operations Controller and Regional Service Manager in this time period.

Mba, General Management

Activities and Societies: Edward Tuck Scholar

A.B., Economics-Applied Math