Co-Founder & Vice President Marketing
CurrentBoard of Directors - Marketing VP, Global Marketing Strategy, PR, Brand Development Co-founded a nonprofit in 2003 to find a cure for Juvenile Myositis (JM) and improve the lives of families affected by JM. Raised over $23 million for medical research for a rare and life-threatening disease that strikes in childhood. Have accrued 20+ years of nonprofit management experience including Board of Directors, VP Marketing, and CFO for Cure JM Foundation. Created the vision to launch this organization to find a cure and to better connect patients and their families with resources they need; including healthcare providers, insurance companies, support networks, researchers, and better treatments. This job is done fully as an unpaid volunteer and only in my spare time. Milestones: • Raised over $21 million for rare disease research funding and educational materials for parents, families, and physicians.• Established six JM research Centers of Excellence in Chicago, Washington, D.C., North Carolina, and Seattle• Won several major national online voting/giving contests including Crowdrise and Pepsi Refresh raising over $1 million with a small but highly engaged social media community.• Published the first book (450 pages) solely about Juvenile Myositis by securing contributions from 75 medical professionals and researchers.• Top-rated non-profit by Greatnonprofits.org 9 years in a row and “Best in America” by the Independent Charities of America. This award is only given to .01% of charities currently operating in the United States.• Shortened the average diagnosis time for patients by 4 months since 2009 through education and awareness.