Executive Director
Current• Inaugural Executive Director for 501(c)(3) organization founded in 2018.• Grow foundation by expanding program offerings, funding of research, and international network of families and researchers.• Recruit, retain and lead highly qualified staff and volunteers by providing professional and personal growth in a team-oriented environment.• Maintain and nurture positive relationships with stakeholders and stakeholder groups including the Chan Zuckerberg Initiative as part of their Rare as One Network.• Drive a donor-centric, mission-driven culture, build relationships and implement fundraising and corporate giving campaigns to accomplish financial goals.• Identify and plan for infrastructure and financial growth to parallel growth of programs, policies and procedures.• Manage all Foundation marketing, branding, communications, and social media campaigns and efforts.• Manage and determine annual budget for overseeing financial planning, allocation of funds, and strategic budgeting initiatives to ensure efficient resource utilization and alignment with organizational goals.