The ACT4ALS-MND network consists of 10 Rare Disease Reference Centres (CRMR) and 12 Rare Disease Resource and Competence Centres (CRCMR). Created in 2020 under the impulse of the FilSLAN healthcare network dedicated to ALS (Amyotrophic Lateral Sclerosis) and motor neurone diseases (MND), it obtained F-CRIN (French Clinical Research Infrastructure Network) accreditation in 2022 and aims to be the one-stop shop for clinical research on ALS and MND in France by supporting project sponsors in setting up their studies and centralizing information relating to trials conducted in ALS expert centres. Its aim is to facilitate the participation of centres and the inclusion of patients in clinical trials (therapeutic and pathophysiological trials, European and international collaborative studies). To achieve this, the network is deploying 4 complementary missions in support of ALS-MND clinical research teams.
Information and communication
-Monitoring calls for projects
-Dissemination of information to network members
-International communication
Administrative support
-Support for budget grids
- Advice and support for regulatory processes
Expertise
-Thematic and scientific expertise (pathophysiology, pharmacology, biomarkers, gene therapy, etc.)
-Clinical and methodological expertise (ALS expert centres, CICs)
-Training (GCP, pathology)
Investigation support
-Assessment of feasibility within the network
-Help in selecting centres
-Follow-up/support for study recruitment.
ACT4ALS-MND has been awarded the F-CRIN label, a nationwide infrastructure for clinical research. Approved by the ANR as part of the ‘Investissements d'avenir’ programme, and supported by the Ministry of Health, its mission is to boost the performance of French clinical research and its attractiveness at European and international level.
Company Details
- Employees
- 1
- Founded
- -
- Industry
- Research Services
- NAICS
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Scientific Research and Development ServicesResearch and Development in the Physical, Engineering, and Life SciencesResearch and Development in the Physical, Engineering, and Life Sciences (except Nanotechnology and Biotechnology)
- Website
- https://act4als.org
- Keywords
- Recherche clinique, Sclérose Latérale Amyotrophique (SLA), Maladies du Neurone Moteur, Réseau de recherche clinique, FilSLAN, Maladie rare, Neurologie, FCRIN, Motoneurone, Neurone Moteur, Essai clinique, réseau, clinical research, French clinical research network, ALS, MND, rare disease, neurology, network, clinical trial, health, recherche en santé.
Act4als-Mnd : Alliance On Clinical Trials For Als-Mnd Questions
Act4Als-Mnd : Alliance On Clinical Trials For Als-Mnd's website is https://act4als.org
Act4Als-Mnd : Alliance On Clinical Trials For Als-Mnd's LinkedIn profile is https://www.linkedin.com/company/act4als-mnd
Act4Als-Mnd : Alliance On Clinical Trials For Als-Mnd has
1 employees.
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employees at Act4Als-Mnd : Alliance On Clinical Trials For Als-Mnd.
Act4Als-Mnd : Alliance On Clinical Trials For Als-Mnd's industry is
Research Services
Act4Als-Mnd : Alliance On Clinical Trials For Als-Mnd's top competitors are
Association Paul Guinot,
Fcrin4ms,
Crisalis F-Crin Network,
Als Financieel Diner,
Borje Salming Als Foundation,
Réseau Ns-Park,
Prize4life,
Cl Coaching,
Filslan - Filière De Santé Maladies Rares,
Darby Rimmer Mnd Foundation.
Act4Als-Mnd : Alliance On Clinical Trials For Als-Mnd's categories are Research Services
Act4Als-Mnd : Alliance On Clinical Trials For Als-Mnd's founding year is 2020
