Action Fcs

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Action FCS wants everyone affected by FCS to live as full and healthy a life as possible. We raise awareness of the patient experience of the condition through different channels. We run virtual events throughout the year, and our annual FCS Awareness Day on the first Friday in November. We support patients and those close to them through our Facbook group 'FCS Community', and we advocate for excellent care and new medicines, representing the patient voice in medicines regulatory processes. Action FCS is run by its board of trustees who are all volunteers.
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