The AKU Society is a patient group that helps people with AKU, a rare genetic disease, and funds research to find a cure. AKU (short for Alkaptonuria) was the first metabolic disease ever discovered, in 1901 in London. It is also known as Black Bone Disease because bones and cartilage go black and brittle. It causes an extreme form of osteoarthritis, as well as problems with the heart, the eyes, ears, kidneys and other parts of the body. There is currently no cure.
The AKU Society works in close partnership with the Royal Liverpool University Hospital/University of Liverpool to find a cure. We are at the centre of an international consortium called DevelopAKUre linking research centres across Europe. This consortium is running a clinical trial to test a promising treatment called nitisinone.
Company Details
- Employees
- 19
- Founded
- -
- Address
- 66 Devonshire Road, Cambridge,cb1 2bl,united Kingdom
- Industry
- Non-Profit Organization Management
- Website
- akusociety.org
- HQ
- Cambridge
Aku Society Questions
Aku Society's website is akusociety.org
Aku Society's LinkedIn profile is https://uk.linkedin.com/company/aku-society
Aku Society has
19 employees.
View email and phone details for 19
employees at Aku Society.
Aku Society's industry is
Non-profit Organization Management
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Aku Society's categories are Non-profit Organization Management
Aku Society's founding year is 2003
