Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart.
Our events and trainings give patient groups the opportunity to connect and collaborate with others across the rare disease space. By working in partnership with patient organisations and other stakeholders, we are transforming the rare patient experience.
Our vision: A world in which no one faces their rare journey alone.
Our mission: To build a united rare disease community with patient groups at its heart.
We have seen the positive impact rare disease support groups have on their community. Through upskilling these groups, we are ushering in change and breaking isolation.
We help all those who engage with us to embark on their personal rare journey with hope, confidence and guidance. Our projects connect stakeholders from around the world to unite, grow and strengthen the rare community. Our events highlight excellence within our field and prompt discussion, reflection and action.
Together we are breaking the isolation felt by those living with a rare condition, uniting all rare diseases into a single unified force.
Beacon, previously known as Findacure, officially launched under its new identity on 1st February 2022.
Company Details
- Employees
- 21
- Founded
- -
- Address
- 66 Devonshire Road, Cambridge,cambridgeshire Cb1 2bl,united Kingdom
- Industry
- Non-Profit Organizations
- Website
- findacure.org.uk
- HQ
- Cambridge, Cambridgeshire
Beacon For Rare Diseases Questions
Beacon For Rare Diseases's website is findacure.org.uk
Beacon For Rare Diseases's LinkedIn profile is https://uk.linkedin.com/company/rarebeacon
Beacon For Rare Diseases has
21 employees.
View email and phone details for 21
employees at Beacon For Rare Diseases.
Beacon For Rare Diseases's industry is
Non-profit Organizations
Beacon For Rare Diseases's top competitors are
Medics For Rare Disease,
Rare Revolution Magazine,
Genetic Alliance Uk,
Rare Diseases International,
Remedi4all,
Cambridge Rare Disease Network (Camrare),
Global Genes,
National Organization For Rare Disorders,
Eurordis-Rare Diseases Europe,
Rare Disease Diversity Coalition.
Beacon For Rare Diseases's categories are Non-profit Organizations
Beacon For Rare Diseases's founding year is 2012
