EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1,000 rare disease patient organisations from more than 70 countries that work together to improve the lives of all people living with rare diseases in Europe.
By connecting and mobilising all stakeholders from within and outside the rare disease community, EURORDIS strengthens the voice of people living with rare diseases and shapes research, policies and services.
Our vision is a world where all people living with a rare disease can have longer and better lives and can achieve their full potential, in a society that values their well-being and leaves no-one behind.
To achieve their full potential, people living with a rare disease need to be:
- recognised as equal citizens with their rights fully respected
- diagnosed timely and accurately
- supported by state-of-the-art medical and social care, or cured
- included in society in all aspects of life and enabled to live independently
Our mission is to work across borders and diseases to improve the lives of all people living with rare diseases.
Company Details
- Employees
- 89
- Founded
- -
- Address
- 96 Rue Didot, Paris,paris 75014,france
- Phone
- +33 1 56 53 52 10
- de****@****dis.org
- Industry
- Non-Profit Organizations
- Website
- eurordis.org
- Keywords
- patient empowerment, European networking of patients, advocacy, policy development, orphan drug policy, Rare Diseases.
- HQ
- Paris, Paris
- Competitors
- Vlaamse overheid, European Patients' Forum, RARE DISEASES INTERNATIONAL, Orphanet, EFPIA - European Federation of Pharmaceutical Industries and Associations, National Organization for Rare Disorders, ERDERA, EUPATI, International Rare Diseases Research Consortium (IRDiRC), Rare Disease Day.
Eurordis-Rare Diseases Europe Questions
Eurordis-Rare Diseases Europe's helpline number is +33 1 56 53 52 10
Eurordis-Rare Diseases Europe's website is eurordis.org
Eurordis-Rare Diseases Europe's LinkedIn profile is https://fr.linkedin.com/company/eurordis
Eurordis-Rare Diseases Europe has
89 employees.
View email and phone details for 89
employees at Eurordis-Rare Diseases Europe.
Eurordis-Rare Diseases Europe's industry is
Non-profit Organizations
Eurordis-Rare Diseases Europe's top competitors are
Vlaamse Overheid,
European Patients' Forum,
Rare Diseases International,
Orphanet,
Efpia - European Federation Of Pharmaceutical Industries And Associations,
National Organization For Rare Disorders,
Erdera,
Eupati,
International Rare Diseases Research Consortium (Irdirc),
Rare Disease Day.
Eurordis-Rare Diseases Europe's support email address is denis.costello@eurordis.org
Eurordis-Rare Diseases Europe's categories are Non-profit Organizations
Eurordis-Rare Diseases Europe's founding year is 1997
