Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.
Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year.
Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organisation partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.
Company Details
- Employees
- 1
- Address
- The Needs Of The Rare Disease Community
- Industry
- Non-Profit Organizations
- Website
- https://www.rarediseaseday.org/
- Keywords
- Towson.
Rare Disease Day Questions
Rare Disease Day's website is https://www.rarediseaseday.org/
Rare Disease Day's LinkedIn profile is https://www.linkedin.com/company/rare-disease-day
Rare Disease Day has
1 employees.
View email and phone details for 1
employees at Rare Disease Day.
Rare Disease Day's industry is
Non-profit Organizations
Rare Disease Day's top competitors are
Eurordis-Rare Diseases Europe,
Global Genes,
Rare Diseases International,
Everylife Foundation For Rare Diseases,
Rare Disease Research, Llc,
Rare-X,
Rare Disease Foundation,
Rare Patient Voice,
National Organization For Rare Disorders,
The Rare Disease Company Coalition.
Rare Disease Day's categories are Non-profit Organizations
