Rare Disease Research, Llc

Rare Disease Research, Llc company information, Employees & Contact Information

Updated June 2026

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Rare Disease Research, Llc is a Biotechnology Research company and founded in 2017. It has approximately 59 employees on record. Contact data was last refreshed in June 2026. Find Rare Disease Research, Llc's verified employee emails, phone numbers, headquarters address, and key decision makers below.

As an independent clinical research site, we are 100% dedicated to conducting clinical research, accelerating the development of safe and effective treatments and providing rare disease patients with access to innovative investigational therapies. We are a passionate, caring, multi-disciplinary team conducting clinical research with expertise and compassion, and always to the highest ethical standards.
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News

Turning rare disease research into a common goal - Elsevier

Turning rare disease research into a common goal Elsevier

Can rare disease research in the US thrive under the new administration? - Pharmaceutical Technology

Can rare disease research in the US thrive under the new administration? Pharmaceutical Technology

Finding answers faster: AI method brings hope to rare disease research - Medical Xpress

Finding answers faster: AI method brings hope to rare disease research Medical Xpress

Review: Utility of mass spectrometry in rare disease research and diagnosis | npj Genomic Medicine - Nature

Review: Utility of mass spectrometry in rare disease research and diagnosis | npj Genomic Medicine Nature

Rare Disease Research Gets a Boost from Automated NGS Solutions - the-scientist.com

Rare Disease Research Gets a Boost from Automated NGS Solutions the-scientist.com

Trump's proposed NIH cuts cause concern about rare disease research - NBC4 Washington

Trump's proposed NIH cuts cause concern about rare disease research NBC4 Washington

Synthetic data generation: a privacy-preserving approach to accelerate rare disease research - Frontiers

Synthetic data generation: a privacy-preserving approach to accelerate rare disease research Frontiers

House OKs boost for pediatric rare disease research - Florida Politics

House OKs boost for pediatric rare disease research Florida Politics

Rare disease research boost for lysosomal scientists backed by Chiesi - Euractiv

Rare disease research boost for lysosomal scientists backed by Chiesi Euractiv

Edgewise Provides Statement Regarding Company’s Relationship with Dr. Han Phan at Rare Disease Research - Business Wire

Edgewise Provides Statement Regarding Company’s Relationship with Dr. Han Phan at Rare Disease Research Business Wire

Grant boosts rare disease research role for Cincinnati Children’s - AADC News

Grant boosts rare disease research role for Cincinnati Children’s AADC News

2025 Rare Disease Day: Leaders from FSU, industry and government unite to advance pediatric rare disease research - Florida State University

2025 Rare Disease Day: Leaders from FSU, industry and government unite to advance pediatric rare disease research Florida State University

AI's Role In Advancing Rare Disease Research - Clinical Leader

AI's Role In Advancing Rare Disease Research Clinical Leader

Annette Bakker, PhD, on rare disease research and ‘real solutions’ for treating patients - Healio

Annette Bakker, PhD, on rare disease research and ‘real solutions’ for treating patients Healio

A patient advocating for transparent science in rare disease research - Orphanet Journal of Rare Diseases

A patient advocating for transparent science in rare disease research Orphanet Journal of Rare Diseases

Unlocking clinical and commercial success: How PAGs power rare disease research - IQVIA

Unlocking clinical and commercial success: How PAGs power rare disease research IQVIA

New EQT Foundation program to fund rare disease research - AADC News

New EQT Foundation program to fund rare disease research AADC News

Florida surges to forefront of rare disease research with boost from Sunshine Genetics Act - Florida State University

Florida surges to forefront of rare disease research with boost from Sunshine Genetics Act Florida State University

Hospital-wide access to genomic data advanced pediatric rare disease research and clinical outcomes - Nature

Hospital-wide access to genomic data advanced pediatric rare disease research and clinical outcomes Nature

HudsonAlpha Awarded 2025 AWS Imagine Grant To Advance Rare Disease Research - Huntsville Business Journal

HudsonAlpha Awarded 2025 AWS Imagine Grant To Advance Rare Disease Research Huntsville Business Journal

Left in limbo: When pharma halts rare disease research - Pharmaceutical Technology

Left in limbo: When pharma halts rare disease research Pharmaceutical Technology

Why are animals used in rare disease research? - European Animal Research Association

Why are animals used in rare disease research? European Animal Research Association

Cracking the code on rare disease research - Show Me Mizzou

Cracking the code on rare disease research Show Me Mizzou

Advancing Rare Disease Research With Patient Registries - Clinical Leader

Advancing Rare Disease Research With Patient Registries Clinical Leader

Don't close the door on rare disease research - PhRMA

Don't close the door on rare disease research PhRMA

Sammy Basso, progeria advocate, has died at 28 - statnews.com

Sammy Basso, progeria advocate, has died at 28 statnews.com

3 Ways Patient Voice is Impacting Rare Disease Research, According to Advocates - Syneos Health

3 Ways Patient Voice is Impacting Rare Disease Research, According to Advocates Syneos Health

Supporting rare disease research at NIH - NIH MedlinePlus Magazine (.gov)

Supporting rare disease research at NIH NIH MedlinePlus Magazine (.gov)

Diversity Elusive in Rare Disease Research - National Press Foundation

Diversity Elusive in Rare Disease Research National Press Foundation

Computational biology in rare disease research - News-Medical

Computational biology in rare disease research News-Medical

Rare disease research gives families hope, ‘vital’ to advancing medicine - Virginia Tech News

Rare disease research gives families hope, ‘vital’ to advancing medicine Virginia Tech News

Advancements in Rare-Disease Research - BioProcess International

Advancements in Rare-Disease Research BioProcess International

Empowering health data to advance rare disease research in Europe - The Parliament Magazine

Empowering health data to advance rare disease research in Europe The Parliament Magazine

Congress Incentivizes Rare Disease Research. Big Pharma Exploits It. - Mother Jones

Congress Incentivizes Rare Disease Research. Big Pharma Exploits It. Mother Jones

Scientific evidence based rare disease research discovery with research funding data in knowledge graph - Orphanet Journal of Rare Diseases

Scientific evidence based rare disease research discovery with research funding data in knowledge graph Orphanet Journal of Rare Diseases

Levelling up UK rare disease research | UCL News - UCL - University College London

Levelling up UK rare disease research | UCL News - UCL University College London

Starting With a Big Boost for Rare Disease Research, This Couple Are Ramping Up Their Giving - Inside Philanthropy

Starting With a Big Boost for Rare Disease Research, This Couple Are Ramping Up Their Giving Inside Philanthropy

Rare disease research at Cambridge receives major boost with launch of two new centres - University of Cambridge

Rare disease research at Cambridge receives major boost with launch of two new centres University of Cambridge

A scoping review and proposed workflow for multi-omic rare disease research - Orphanet Journal of Rare Diseases

A scoping review and proposed workflow for multi-omic rare disease research Orphanet Journal of Rare Diseases

McGill student bikes across Quebec and plays piano to support rare disease research - Classic107

McGill student bikes across Quebec and plays piano to support rare disease research Classic107

On Biology Rare disease research helps us understand medicine for all diseases - BMC blog network

On Biology Rare disease research helps us understand medicine for all diseases BMC blog network

Rare Disease Research at NINDS - National Institute of Neurological Disorders and Stroke (.gov)

Rare Disease Research at NINDS National Institute of Neurological Disorders and Stroke (.gov)

How rare disease research benefits everyone - Raconteur

How rare disease research benefits everyone Raconteur

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research - Nature

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research Nature

How rare disease research is changing cancer treatment - The Conversation

How rare disease research is changing cancer treatment The Conversation

Chancellor to recognize rare disease research advocate at Commencement 2015 - UMass Chan Medical School

Chancellor to recognize rare disease research advocate at Commencement 2015 UMass Chan Medical School

GUARD strengthens rare disease research — Ghent University - ugent.be

GUARD strengthens rare disease research — Ghent University ugent.be

University chosen for specialist base as part of £14m investment in rare disease research - Swansea University

University chosen for specialist base as part of £14m investment in rare disease research Swansea University

Skydiving for a cure: father raises $20k for rare disease research - CTV News

Skydiving for a cure: father raises $20k for rare disease research CTV News

Queensland family takes on rare disease research to save daughter - Australian Broadcasting Corporation

Queensland family takes on rare disease research to save daughter Australian Broadcasting Corporation

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