Cure Rare Disease

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Cure Rare Disease is a nonprofit biotechnology company whose mission is to enable and finance the development of life-saving genetic medicines for rare and ultra-rare patient populations previously deemed too rare to treat. To realize this, our unique ecosystem facilitates collaboration between world-renowned researchers and clinicians, policy experts and our generous donors. Together, we are fundamentally changing the rare and ultra-rare disease experience and burden for millions of people around the world with our discoveries and methods—while bringing hope to patients waiting for a cure.

Company Details

Employees
21
Founded
-
Address
1575 Tremont St.,
Phone
+1 833 863 6663
Email
in****@****eRD.org
Industry
Biotechnology
Website
cureraredisease.org
Keywords
drug development, research, advocacy, education, pharmaceuticals, precision therapy, gene editing, CRISPR, nonprofit, fundraising, accessibility, duchenne, rare disease.
HQ
Boston, Massachusetts
Competitors
RARE-X, National Organization for Rare Disorders, Ernexa Therapeutics, Rare Disease Foundation, Rare Diseases Clinical Research Network (RDCRN), Global Genes, EveryLife Foundation for Rare Diseases, The Rare Disease Company Coalition, Rare Disease Research, LLC, RARE DISEASES INTERNATIONAL.
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News

Cure Rare Disease Welcomes New Scientific and Strategic Leaders to Advance Therapies for Ultra-Rare Conditions - Business Wire

Cure Rare Disease Welcomes New Scientific and Strategic Leaders to Advance Therapies for Ultra-Rare Conditions Business Wire

Cure Rare Disease Receives FDA Feedback on Limb-Girdle 2i/R9 Gene Therapy Program Following Successful Pre-IND Meeting - Business Wire

Cure Rare Disease Receives FDA Feedback on Limb-Girdle 2i/R9 Gene Therapy Program Following Successful Pre-IND Meeting Business Wire

Cure Rare Disease Secures FDA Orphan Drug Designation for Investigational Gene Therapy to Treat Limb-Girdle Muscular Dystrophy Type R9 (LGMD2i/R9) - Business Wire

Cure Rare Disease Secures FDA Orphan Drug Designation for Investigational Gene Therapy to Treat Limb-Girdle Muscular Dystrophy Type R9 (LGMD2i/R9) Business Wire

Dose-Limiting AAV Toxicity Responsible for Cure Rare Disease’s DMD Trial Death - CGTLive®

Dose-Limiting AAV Toxicity Responsible for Cure Rare Disease’s DMD Trial Death CGTLive®

Cure Rare Disease Welcomes Leading Experts to Scientific Advisory Board - citybiz

Cure Rare Disease Welcomes Leading Experts to Scientific Advisory Board citybiz

Death after High-Dose rAAV9 Gene Therapy in a Patient with Duchenne’s Muscular Dystrophy - The New England Journal of Medicine

Death after High-Dose rAAV9 Gene Therapy in a Patient with Duchenne’s Muscular Dystrophy The New England Journal of Medicine

Florida couple seeks cure for grandson’s rare dystrophy - The Florida Times-Union

Florida couple seeks cure for grandson’s rare dystrophy The Florida Times-Union

Boston-based biotech company Cure Rare Disease relocating to Woodbridge - CT Insider

Boston-based biotech company Cure Rare Disease relocating to Woodbridge CT Insider

Elite Hockey Academy's 'Skate for a Cure' Raises $6,000 | North Branford - Patch

Elite Hockey Academy's 'Skate for a Cure' Raises $6,000 | North Branford Patch

Cure Rare Disease Receives Orphan Drug Designation from FDA for Investigational Therapy Targeting Spinocerebellar Ataxia Type 3 (SCA3) - Business Wire

Cure Rare Disease Receives Orphan Drug Designation from FDA for Investigational Therapy Targeting Spinocerebellar Ataxia Type 3 (SCA3) Business Wire

Harriet Moskowitz Obituary - Palm Beach Gardens, FL - Dignity Memorial

Harriet Moskowitz Obituary - Palm Beach Gardens, FL Dignity Memorial

DMD Patient Dies in CRISPR Gene Therapy Trial Led By Nonprofit Biotech Cure Rare Disease - CGTLive®

DMD Patient Dies in CRISPR Gene Therapy Trial Led By Nonprofit Biotech Cure Rare Disease CGTLive®

Cure Rare Disease’s CRD-002 awarded orphan drug designation for spinocerebellar ataxia type 3 - BioWorld MedTech

Cure Rare Disease’s CRD-002 awarded orphan drug designation for spinocerebellar ataxia type 3 BioWorld MedTech

Boulder family works with nonprofit to find treatment for rare disease - The Denver Post

Boulder family works with nonprofit to find treatment for rare disease The Denver Post

Columbia family fights to cure rare disease - Carolina News and Reporter |

Columbia family fights to cure rare disease Carolina News and Reporter |

Golf Event Helps Fund Treatment For Boy, 6, With Rare Disease | Branford - Patch

Golf Event Helps Fund Treatment For Boy, 6, With Rare Disease | Branford Patch

Cure Rare Disease Appoints Brittany Stineman as Chief Advancement Officer - Business Wire

Cure Rare Disease Appoints Brittany Stineman as Chief Advancement Officer Business Wire

Cure Rare Disease Awarded $5.69 Million CIRM Grant to Advance Gene Therapy for Spinocerebellar Ataxia Type 3 - Business Wire

Cure Rare Disease Awarded $5.69 Million CIRM Grant to Advance Gene Therapy for Spinocerebellar Ataxia Type 3 Business Wire

We Row For William: 157 Miles, One Nonstop Journey of Hope - Business Wire

We Row For William: 157 Miles, One Nonstop Journey of Hope Business Wire

Parents fight to cure rare disease - CNN

Parents fight to cure rare disease CNN

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