Global Genes

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Empowering the Next Generation Rare Disease Advocate. Global Genes and RARE-X officially merged into one organization December 2022 under the name Global Genes. Both organizations have been working toward the goal of empowering the next generation advocate both through their individual initiatives and their strategic partnership announced in 2021. RARE-X was born out of Global Genes after discussions with advocacy leaders, board members, partners, patients, and care partners, addressing a significant gap in access to tools, technology, and infrastructure. Hope. It’s in our genes.™
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Global Genes and Boston Children's Hospital Partner for 2025 RARE Drug Development Symposium - Equipping Rare Disease Advocates in Research and Drug Development - PR Newswire

Global Genes and Boston Children's Hospital Partner for 2025 RARE Drug Development Symposium - Equipping Rare Disease Advocates in Research and Drug Development PR Newswire

Pharma Industry News and Analysis - FirstWord Pharma

Pharma Industry News and Analysis FirstWord Pharma

Spruce Biosciences Skyrockets on FDA Breakthrough – Will SPRB’s Rally Last or Fade? - ts2.tech

Spruce Biosciences Skyrockets on FDA Breakthrough – Will SPRB’s Rally Last or Fade? ts2.tech

White Paper Shows Role of Ongoing Patient Engagement to Improve Rare Disease Clinical Trials, Costs, and Success Rates - PR Newswire

White Paper Shows Role of Ongoing Patient Engagement to Improve Rare Disease Clinical Trials, Costs, and Success Rates PR Newswire

O.C. nonprofit empowers those with rare diseases - Los Angeles Times

O.C. nonprofit empowers those with rare diseases Los Angeles Times

Biopharmaceutical research and development has ushered in a decade of innovation in rare disease - PhRMA

Biopharmaceutical research and development has ushered in a decade of innovation in rare disease PhRMA

1 in 10 Americans have a rare disease, but few have treatments - statnews.com

1 in 10 Americans have a rare disease, but few have treatments statnews.com

Rare Disease Day – why it’s important to show your stripes - PMLiVE

Rare Disease Day – why it’s important to show your stripes PMLiVE

Why patient-centricity is essential to accelerate rare disease clinical research - European Pharmaceutical Review

Why patient-centricity is essential to accelerate rare disease clinical research European Pharmaceutical Review

Glenwood students learn about ‘Rare Disease Day’ from one of their own - Post Independent

Glenwood students learn about ‘Rare Disease Day’ from one of their own Post Independent

Finding patients using similarity measures in a rare diseases-oriented clinical data warehouse: Dr. Warehouse and the needle in the needle stack - ScienceDirect.com

Finding patients using similarity measures in a rare diseases-oriented clinical data warehouse: Dr. Warehouse and the needle in the needle stack ScienceDirect.com

AI's Role In Advancing Rare Disease Research - Clinical Leader

AI's Role In Advancing Rare Disease Research Clinical Leader

Colpitts Clinical Staff Show Dedication to Research at Boston’s Rare Disease Day - Massachusetts Biotechnology Council

Colpitts Clinical Staff Show Dedication to Research at Boston’s Rare Disease Day Massachusetts Biotechnology Council

Genetic Testing for Rare Diseases: A Systematic Review of Ethical Aspects - Frontiers

Genetic Testing for Rare Diseases: A Systematic Review of Ethical Aspects Frontiers

Engineered Living Therapeutics: How “Bugs as Drugs” Are Transforming Medicine in 2025 - ts2.tech

Engineered Living Therapeutics: How “Bugs as Drugs” Are Transforming Medicine in 2025 ts2.tech

Advice for Caregivers of People with Rare Diseases - Brain & Life

Advice for Caregivers of People with Rare Diseases Brain & Life

Building a Bridge Between Rare Disease Patients and the Technologies that Could Help Them - Inside Precision Medicine

Building a Bridge Between Rare Disease Patients and the Technologies that Could Help Them Inside Precision Medicine

Targeting shared molecular etiologies to accelerate drug development for rare diseases - EMBO Press

Targeting shared molecular etiologies to accelerate drug development for rare diseases EMBO Press

The economic burden of diagnostic uncertainty on rare disease patients - BMC Health Services Research

The economic burden of diagnostic uncertainty on rare disease patients BMC Health Services Research

It’s not just a disease, it’s genetics - Los Angeles Times

It’s not just a disease, it’s genetics Los Angeles Times

Celebrities and Rare Disease Community Turn Out To Support Global Genes Project's 1st Annual "Tribute to Champions of Hope" Benefit - CNBC

Celebrities and Rare Disease Community Turn Out To Support Global Genes Project's 1st Annual "Tribute to Champions of Hope" Benefit CNBC

The rare disease challenge meeting - New Scientist

The rare disease challenge meeting New Scientist

A questionnaire-based study to comprehensively assess the status quo of rare disease patients and care-givers in China - Orphanet Journal of Rare Diseases

A questionnaire-based study to comprehensively assess the status quo of rare disease patients and care-givers in China Orphanet Journal of Rare Diseases

Rare Expertise Announces the Launch of the Rare Medical Network - PR Newswire

Rare Expertise Announces the Launch of the Rare Medical Network PR Newswire

Rare disease clinical trials - PharmaTimes

Rare disease clinical trials PharmaTimes

Rare Diseases: A Psychiatric Concern? - Psychiatry Advisor

Rare Diseases: A Psychiatric Concern? Psychiatry Advisor

The urgent need to empower rare disease organizations in China: an interview-based study - Orphanet Journal of Rare Diseases

The urgent need to empower rare disease organizations in China: an interview-based study Orphanet Journal of Rare Diseases

Focus on Rare Diseases - Pharma Voice

Focus on Rare Diseases Pharma Voice

Champions of Hope Gala set for Sept. 26 - Orange County Register

Champions of Hope Gala set for Sept. 26 Orange County Register

Charity: Global Genes | RARE Project ‘Tribute to Champions of Hope’ Gala - Newport Beach Indy

Charity: Global Genes | RARE Project ‘Tribute to Champions of Hope’ Gala Newport Beach Indy

Rooted in Purpose: One Company’s Journey toward the First Treatment for a Rare Lung Disease - Fierce Biotech

Rooted in Purpose: One Company’s Journey toward the First Treatment for a Rare Lung Disease Fierce Biotech

Quest to cure Blau syndrome a family affair - Goldstream News Gazette

Quest to cure Blau syndrome a family affair Goldstream News Gazette

Cindrella, Rapunzel, Sleeping Beauty: Not old time princesses but new age medical disorders - The News Minute

Cindrella, Rapunzel, Sleeping Beauty: Not old time princesses but new age medical disorders The News Minute

Twelve surgeries in 11 years: Living with Cowden's Syndrome - SILive.com

Twelve surgeries in 11 years: Living with Cowden's Syndrome SILive.com

Hawthorn Woods event to benefit medical research - Daily Herald

Hawthorn Woods event to benefit medical research Daily Herald

Kevin Wayne Smith Obituary (2023) - Golden, CO - Foothills Cremation and Funeral Service - Castle Rock - Legacy obituary

Kevin Wayne Smith Obituary (2023) - Golden, CO - Foothills Cremation and Funeral Service - Castle Rock Legacy obituary

Brooks Hill Obituary (2014) - South Boston, MA - The Patriot Ledger - Legacy obituary

Brooks Hill Obituary (2014) - South Boston, MA - The Patriot Ledger Legacy obituary

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