The UDNF fosters collaboration among patients, clinicians, and scientists to enhance the quality of life of undiagnosed and ultra-rare disease patients. We do this by mitigating barriers to equity and access in healthcare; setting standards for patient management; and bridging diagnosis and therapeutics as well as research and clinical care in undiagnosed patients and patients with ultra-rare diseases.
Led by and for patients and their families, the UDNF is a central resource for the undiagnosed community. From when a patient first experiences unexplained symptoms to their 10-year anniversary of effective treatment, the UDNF partners with the Undiagnosed Diseases Network and broader community, as well as provides the resources, community, and research they need to live their best lives. No patient or family will have to traverse the unknown alone.
We envision a learning healthcare system where researchers, clinicians, and patients work together to advance individual and community well-being. By leveraging advancements in science, technology, and service delivery, we aim to continuously improve health quality and efficiency for undiagnosed patients.
Our mission is to improve access to diagnosis, research, and care for all individuals with undiagnosed and ultra-rare conditions.
Our vision is healthcare that embraces the unknown and pursues clinical and research solutions for patient wellbeing.
Company Details
- Employees
- 13
- Founded
- -
- Address
- 1012 14th St Nw, Washington,district Of Columbia 20005,united States
- Industry
- Health And Human Services
- NAICS
-
Administration of Human Resource ProgramsAdministration of Veterans' Affairs
- Website
- http://udnf.org
- Keywords
- Washington.
- HQ
- Washington, District of Columbia
Undiagnosed Diseases Network Foundation (Udnf) Questions
Undiagnosed Diseases Network Foundation (Udnf)'s website is http://udnf.org
Undiagnosed Diseases Network Foundation (Udnf)'s LinkedIn profile is https://www.linkedin.com/company/udnforg
Undiagnosed Diseases Network Foundation (Udnf) has
13 employees.
View email and phone details for 13
employees at Undiagnosed Diseases Network Foundation (Udnf).
Undiagnosed Diseases Network Foundation (Udnf)'s industry is
Health and Human Services
Undiagnosed Diseases Network Foundation (Udnf)'s top competitors are
Rare-X,
Cure Rare Disease,
Undiagnosed Diseases Network (Udn),
Rare Disease Diversity Coalition,
The Rare Disease Company Coalition,
National Organization For Rare Disorders,
Global Genes,
Everylife Foundation For Rare Diseases,
Wilhelm Foundation,
Rare Diseases International.
Undiagnosed Diseases Network Foundation (Udnf)'s categories are Health and Human Services
Undiagnosed Diseases Network Foundation (Udnf)'s founding year is 2023
