Jennifer Tousseau

Jennifer Tousseau Email and Phone Number

Patient Navigator | Lead Site Navigator, Stanford UDN | Communications and Advocacy @ Undiagnosed Diseases Network Foundation (UDNF)
Sacramento, CA, US
Jennifer Tousseau's Location
Lincoln, California, United States, United States
Jennifer Tousseau's Contact Details

Jennifer Tousseau work email

Jennifer Tousseau personal email

n/a
About Jennifer Tousseau

Jennifer Tousseau is a Patient Navigator | Lead Site Navigator, Stanford UDN | Communications and Advocacy at Undiagnosed Diseases Network Foundation (UDNF). Colleagues describe them as "As a patient advocate and board member at the Autoinflammatory Alliance Jennifer Tousseau excels at working with patients, medical professionals, research collaborations and a a leader for outreach to help improve and advance patient care. Within this role Jennifer has developed numerous educational materials for both patients and medical professionals, collaborated to find access to care solutions for patients, especially those needing improved access to treatment and specialized care. She has helped to improve patient directed materials, and resources to address medical professionals too. Jennifer has been an essential facilitator for our organization outreach and education efforts online and in-person for patients ad caregivers, and programs for medical seminars and conferences.She has helped to develop a lot of our leading resources on our org saidsupport.org blog as the lead content creator and editor. Jennifer has worked with thousands of diverse rare disease patients and caregivers for advocacy and outreach to address their needs, and a key effort is helping people and even healthcare providers at times to navigate the process for access to various pharmaceutical medications for autoinflammatory diseases. She is skilled at helping to interpret complex medical research and pharmaceutical literature into plain language summaries with making sure to address the key needs to help answer questions, and what is needed if healthcare providers and their patients are encountering issues with prior authorizations or other challenges with insurance approvals. In addition, Jennifer is excellent at being able to take on new roles and learn about the key needs and how to implement them, and is a dedicated, innovative person that can find new ways to solve problems, and collaborate with others to make a difference."

Jennifer Tousseau's Current Company Details
Undiagnosed Diseases Network Foundation (UDNF)

Undiagnosed Diseases Network Foundation (Udnf)

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Patient Navigator | Lead Site Navigator, Stanford UDN | Communications and Advocacy
Sacramento, CA, US
Website:
udnf.org
Employees:
13
Jennifer Tousseau Work Experience Details
  • Undiagnosed Diseases Network Foundation (Udnf)
    Patient Navigator | Lead Site Navigator, Stanford Udn | Communications And Advocacy
    Undiagnosed Diseases Network Foundation (Udnf)
    Sacramento, Ca, Us
  • Undiagnosed Diseases Network Foundation (Udnf)
    Patient Navigator
    Undiagnosed Diseases Network Foundation (Udnf) Jan 2024 - Present
    •Developing policies and procedures for the Patient Navigation program. •Assist undiagnosed patients in the application process for the Undiagnosed Diseases Network (UDN). •Act as a liaison between the UDN site and UDN participants to provide timely updates and answers to questions. •Assist UDN participants and other undiagnosed and ultra-rare disease patients with resources needed as they navigate the healthcare system. •Social media community management and engagement. •Newsletter editor responsible for the story development and content management of the UDNF monthly e-news.
  • Autoinflammatory Alliance
    Board Member
    Autoinflammatory Alliance 2013 - Present
    • Enable patient engagement by creating and providing educational resources on their rare disease and guidance for accessing health resources, including pharmaceutical patient support services and clinical trials.• Support the organization and planning of in-person patient meetings and activities, including internationally attended medical conferences held at the National Institutes of Health and Walter Reed Medical Center and online medical seminars.• Represent the organization at immunology and rheumatology medical conferences, distributing diagnostic and educational resources and raising awareness about rare autoinflammatory diseases. • Conduct patient research surveys and perform in-depth analysis of survey data to support the development of medical publications.• Collaborate with the CARRA Autoinflammatory Working Group to write, annotate, and edit research papers. Contributions led to the acceptance of abstracts and poster presentations at medical conferences, including the American College of Rheumatology (ACR) Annual Meeting and the European Paediatric Rheumatology (PreS) Congress.• Launched and currently manage the SAIDSupport.org website, reaching a monthly user audience of over 100,000.• Research, write, and edit medical content for organization websites and print publications. This includes the Healthier Ever After” book, which provides tips for parents and caregivers giving children daily injections to treat their disease. • Consult with pharmaceutical representatives offering expertise on pharmaceutical educational materials and addressing patient access challenges. • Promote organization activities via creative and strategic social media posts, resulting in a substantial increase in engagement from both the medical community and patients.

Jennifer Tousseau Education Details

Frequently Asked Questions about Jennifer Tousseau

What company does Jennifer Tousseau work for?

Jennifer Tousseau works for Undiagnosed Diseases Network Foundation (Udnf)

What is Jennifer Tousseau's role at the current company?

Jennifer Tousseau's current role is Patient Navigator | Lead Site Navigator, Stanford UDN | Communications and Advocacy.

What is Jennifer Tousseau's email address?

Jennifer Tousseau's email address is je****@****dnf.org

What schools did Jennifer Tousseau attend?

Jennifer Tousseau attended California State University-Sacramento, Hmx – Harvard Medical School, Hmx – Harvard Medical School.

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