Orphanet is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. Orphanet aims to provide high-quality information on rare diseases, and ensure equal access to knowledge for all stakeholders. Orphanet also maintains the Orphanet rare disease nomenclature (ORPHAcode), essential in improving the visibility of rare diseases in health and research information systems.
Orphanet was established in France by the INSERM (French National Institute for Health and Medical Research) in 1997.This initiative became a European endeavour from 2000, supported by grants from the European Commission: Orphanet has gradually grown to a network of 36 countries, within Europe and across the globe.
Orphanet is coordinated by INSERM US14 in Paris @inserm
Company Details
- Employees
- 20
- Address
- 96, Rue Didot, Plateforme Maladies Rares,france
- Industry
- Public Health
- NAICS
-
Administration of Public Health Programs
- Website
- http://www.orpha.net
- Keywords
- Public Health.
- HQ
- Paris, Île-de-France
- Competitors
- National Organization for Rare Disorders, Rare Disease Day, Foundation For Rare Diseases, RARE Revolution Magazine, Maladies Rares Info Services, International Rare Diseases Research Consortium (IRDiRC), Alliance maladies rares, RARE DISEASES INTERNATIONAL, ERDERA, EURORDIS-Rare Diseases Europe.
Orphanet Questions
Orphanet's website is http://www.orpha.net
Orphanet's LinkedIn profile is https://fr.linkedin.com/company/orphanet
Orphanet has
20 employees.
View email and phone details for 20
employees at Orphanet.
Orphanet's industry is
Public Health
Orphanet's top competitors are
National Organization For Rare Disorders,
Rare Disease Day,
Foundation For Rare Diseases,
Rare Revolution Magazine,
Maladies Rares Info Services,
International Rare Diseases Research Consortium (Irdirc),
Alliance Maladies Rares,
Rare Diseases International,
Erdera,
Eurordis-Rare Diseases Europe.
Orphanet's categories are Public Health
